In March, over 150 NFXF Advocates descended onto Capitol Hill to once again advocate for Fragile X and raise awareness among Congress.
A top ask is to join efforts to support Fragile X programs at the National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC). Members of Congress do this by signing joint letters to the respective Appropriations Committee.
A special thanks to the following members of the House: Harper, Engel, Yarmuth, McGovern, Vargas, Carbajal, DeSaulnier, Connolly, Jenkins, Brady, Himes, Lynch, Espaillat, Etsy, Moulton, Gonzalez, Danny Davis, Larson, Deutch, Courtney, Rice, Larsen, Faso, Polis, Keating, and Costello, and to the following Senators: Stabenow, Isakson, Blumenthal, Brown, Gillibrand, Markey, Murphy, Peters, Reed, Van Hollen, and Warren.
NFXF staff continue to work with Senate and House Appropriations Committee staff and our champions as the Appropriations process progresses throughout the year.