Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.


Host a fundraiser

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What We Do

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Sat 21

MN: Adult dinner

April 21 @ 6:00 PM - 10:00 PM UTC-6
Northfield MN
Sun 22

SLO Autism Walk

April 22 @ 12:00 PM - 4:00 PM UTC-5
San Luis Obispo CA
Sun 29

9th Annual Monkey Madness 5K Run and Family Fun Walk

April 29 @ 7:30 AM - 12:30 PM UTC-5
Miami FL
Mon 30

IN: NFXF Tri-State Chapter Annual Golf Outing

April 30 @ 11:30 AM - 7:00 PM UTC-6
Lawrenceburg IN
May 12

Fitlife Golf Tournament and Fundraiser for National Fragile X Foundation

May 12 @ 8:00 AM - 5:00 PM UTC-5
Scottsdale AZ
May 20

Fragile X at the Ballpark

May 20 @ 12:30 PM - 4:00 PM UTC-5
Trenton NJ
Jun 02

IA and SD: Bike To X Out Fragile X

June 2 @ 7:30 AM - 5:00 PM UTC-5
Ankeny IA
Hi Joshua!
Hi Christian!
Hi Zach!
Hi Eric, Cole, Cale!
Eric, Cole and Cale
Hi Samantha!

NFXF Biobank™

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Woody Belt

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

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Contact Us