Yes, the conference is happening!
Register now for dates in May, June & July.
May 29-30 — Fragile X Syndrome Across the Lifespan
June 27— Premutation Carrier Issues
July 22— Fragile X Research Roundup
Yes, the conference is happening!
Register now for dates in May, June & July.
May 29-30 — Fragile X Syndrome Across the Lifespan
June 27— Premutation Carrier Issues
July 22— Fragile X Research Roundup
Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition.
We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.
So grab a family member or social-distance team and join us virtually on September 27, 2020 for fun, exercise, and raising awareness and funds for Fragile X from anywhere in the world!
Riley was born with Fragile X, and when he was first diagnosed, his parents were told he would never walk, talk, or do much of anything. Today, Riley is 10 years old, a wonderful student, and is making his own dream come true: his dream of becoming an astronaut.
Interested in connecting with a larger community? We’d love to hear from you! Check out the number of ways to get involved.
