The National Fragile X Foundation

The National Fragile X Foundation
Your gift supports the Fragile X Community!

Yes, the conference is happening!
Register now for dates in May, June & July.

May 29-30 — Fragile X Syndrome Across the Lifespan
June 27— Premutation Carrier Issues
July 22— Fragile X Research Roundup

Yes, the conference is happening!
Register now for dates in May, June & July.

May 29-30 — Fragile X Syndrome Across the Lifespan
June 27— Premutation Carrier Issues
July 22— Fragile X Research Roundup

What Is Fragile X Syndrome?

Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition.

We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Spotlight: Riley Lynch

Spotlight:
Riley Lynch

Riley was born with Fragile X, and when he was first diagnosed, his parents were told he would never walk, talk, or do much of anything. Today, Riley is 10 years old, a wonderful student, and is making his own dream come true: his dream of becoming an astronaut.

Read Riley's Story

Our Vision, Mission and Priorities

Our Vision — A world where every family is empowered to successfully navigate the Fragile X journey.

Our Mission — To serve the entire Fragile X community to live their best lives by providing the knowledge, resources, and tools until, and even after, more effective treatments and a cure are achieved.

Our Priorities — We achieve our vision and mission with the support and focus on our Community through four strategic priority areas: Advocacy, Education, Research, and Treatment.

Make An Impact

Interested in connecting with a larger community? We’d love to hear from you! Check out the number of ways to get involved.