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26

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Chapters

30

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Clinics

10,000+

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Families

MAKE AN IMPACT

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Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

ADVOCACY

Host a fundraiser

HOST FUNDAISER

Connect Locally

CONNECT LOCALLY

Be a Volunteer

VOLUNTEERS

WHAT WE DO

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Awareness - To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.
Research - To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.
Community - To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.
Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

READ MORE
Join The Community

Find events and local community groups near you.

FIND COMMUNITY
Discover Research

Find a clinic and get involved in current research projects.

RESEARCH / CLINIC

NEWS, EVENTS AND FAMILY STORIES

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These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Mouse and Tracy
Nov 02

St. Louis: Mouse and Tracy – Hyperarousal and Anxiety in Fragile X

November 2 @ 9:00 AM - November 3 @ 3:00 PM UTC-5
Chesterfield MO
Connecticut Group Conference 2017 group
Nov 03

Teaching Pro-Social Behaviors, Motivating Learning and Exploring Future Independence Strategies For All Ages

November 3 @ 8:00 AM - 5:00 PM EDT
Farmington CT
Nov 03

Fragile X 5K & 8th Annual Awareness Walk

November 3 @ 8:00 AM - 12:00 PM UTC-5
San Antonio TX
Nov 18

X Strides: Southeast Pennsylvania

November 18

View More…

Joshua
Hi Joshua!
Christian
Hi Christian!
Zach
Hi Zach!
Eric, Cole and Cale
Hi Eric, Cole, Cale!
Samantha
Hi Samantha!

NFXF Biobank™

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

Recent Projects

New York Stock Exchange bell ringing

We were invited to the New York Stock Exchange to ring the opening bell, giving us the amazing chance to raise awareness for Fragile X. Our president Brian Silver and CEO Tony Ferlenda were joined at the podium by 12 other friends and family members of the community. Watch the Video

Anything for Fragile X

Our incredible volunteers have run grueling obstacle courses, given up their birthdays, organized fundraisers and even shaved their heads for Fragile X. You can make a difference today! Will you do anything for Fragile X ?

X-Strides: Walks for Fragile X

Help our cause to move Fragile X research and awareness forward by participating in our X-Strides program. Participate in one of our many walk/run events across the country, represent the NFXF in other races or even organize an event in your home town!

NFXF Advocacy Day

On National Fragile X Foundation Advocacy Day, volunteer advocates head to Washington, DC to train for the next day's visit with their Members of Congress on Capitol Hill. There they will share their stories, influence public policy and advocate for federal funding which has resulted in tens of millions of dollars toward Fragile X programs and research. Join Us