MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Host a fundraiser

Host Fundraiser

Connect Locally

Be a Volunteer

Volunteers

What We Do

Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.

Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.

Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

NEWS

A note to all of our volunteers
April 18, 2018 by Tara Jabbari
Volunteer
First “All in for Fragile X” Casino Night was a success!
April 17, 2018 by Tara Jabbari
Fragile X Conference at Boston Children’s Educates Families
April 13, 2018 by Dan Whiting
Fragile X Awareness Happens All Year
April 10, 2018 by Dan Whiting
A Fun Moms’ Night Out!
April 9, 2018 by Tara Jabbari

9th Annual Monkey Madness 5K Run and Family Fun Walk

April 29 @ 7:30 AM - 12:30 PM UTC-5

Miami FL

Mon 30

IN: NFXF Tri-State Chapter Annual Golf Outing

April 30 @ 11:30 AM - 7:00 PM UTC-6

Lawrenceburg IN

May 12

Fitlife Golf Tournament and Fundraiser for National Fragile X Foundation

May 12 @ 8:00 AM - 5:00 PM UTC-5

Scottsdale AZ

Jun 02

IA and SD: Bike To X Out Fragile X

June 2 @ 7:30 AM - 5:00 PM UTC-5

Ankeny IA

NFXF Biobank™

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

22

Chapters

30

Clinics

10,000+

Families

MAKE AN IMPACT

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Advocacy

Host a fundraiser

Connect Locally

Be a Volunteer

What We Do

Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.

Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.

Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Learn About Fragile X

Join The Community

Discover Research

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

A note to all of our volunteers

First “All in for Fragile X” Casino Night was a success!

Fragile X Conference at Boston Children’s Educates Families

Fragile X Awareness Happens All Year

A Fun Moms’ Night Out!

Joshua

Christian

Zach

Eric, Cole and Cale

Samantha

NFXF Biobank™

Volunteer Spotlight

Meet Woody Belt

Recent Projects

New York Stock Exchange bell ringing

Anything for Fragile X

X-Strides: Walks for Fragile X

NFXF Advocacy Day

Contact Us