Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.


Host a fundraiser

Connect Locally

Be a Volunteer

What We Do

Learn About Fragile X

Learn about Fragile X and read in-depth articles for daily living strategies.

Read More

Join The Community

Find events and local community groups near you.

Find community

Discover Research

Find a clinic and get involved in current research projects.

Research / Clinic

News, Events and Family Stories

These are our latest articles, news and events, along with stories directly from the families we serve. These are just a sample of what we are doing to achieve our mission to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

Sat 18

CA: Summer Family Fun Day-Northridge

August 18 @ 12:00 PM - 3:00 PM UTC-5
Fenton MO
Sat 25

CA: Summer Family Fun Day – Long Beach

August 25 @ 10:00 AM - 1:00 PM UTC-8
Fenton MO
Sat 25

MO: Fragile X Mouse Races

August 25 @ 6:30 PM - 10:00 PM UTC-6
Fenton MO
Sep 15

X Strides: Central California

September 15
Atascadero CA
Sep 29

X Strides 2018 Heartland

September 29 @ 8:00 AM - 10:30 AM UTC-5
Ankeny IA
Oct 14

MA: Cork and Cafe

October 14 @ 5:00 PM - 7:00 PM UTC-5
Hadley MA
Oct 27

WA: NFXF Washington State Chapter Conference

October 27 @ 8:00 AM - 4:00 PM UTC-8
Tumwater WA
Hi Joshua!
Hi Christian!
Hi Zach!
Hi Eric, Cole, Cale!
Eric, Cole and Cale
Hi Samantha!

NFXF Biobank™

Designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders. Learn more

Woody Belt

Volunteer Spotlight

Meet Woody Belt

“Woody is one of the co-leaders of the Northern Vermont group. He and his wife are the proud parents of a son with Fragile X. Woody works in the education field, bringing great insight and experience to his leadership role. Thank you, Woody, for being an outstanding volunteer and for sharing your talents with our community.”

Contact Us

Contact Us