Presented by Rebecca Shaffer, PsyD

This presentation focuses on signs of emotion dysregulation in Fragile X syndrome and ways to respond including practical strategies and an Emotion Regulation Toolkit to take home.

Runtime: 57:37

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About the Speaker

Rebecca Shaffer

Director of Psychological Services, Cincinnati Fragile X Treatment and Research Center, Cincinnati Children’s Hospital Medical Center

Dr. Shaffer provides psychological assessment and behavioral treatment to a wide age of individuals with Fragile X and carriers.  She also conducts research and provides assessments for research studies.

Additional Resources

Behavior & Fragile X Syndrome
When discussing Fragile X syndrome and behavior, it is important to note that — like every person — the focus should be on the individual. Many behaviors are positive, and it is those behaviors you will see most often in addition to challenging behaviors. Behavior problems serve a purpose (or a function) and are often a form of communication. Addressing behavioral challenges in an individual with FXS should start with a comprehensive evaluation. A proactive approach with appropriate support and accommodations will likely foster positive outcomes and set up the individual with FXS to succeed in their home, school, or community.