31 Shareable Fragile X Facts

Why 31? Because there are 31 days in July, and every July is National Fragile X Awareness Month! So you’ll always find at least 31 facts right here (plus plenty of bonus facts), that you can read or watch + listen from Fragile X community members including moms, dads, siblings, self-advocates, researchers, genetic specialists, staff, and more. Take a listen!

Fragile X Fact #11

Fragile X syndrome can occur in both males and females.

GENETICS & INHERITANCE

Fragile X Fact #12

While every Fragile X clinic is set up a little differently, they all offer similar services. They are staffed by people who understand Fragile X. One family shared this after their consultation: “Visiting a Fragile X clinic was the best thing I have ever done. I did not hear: Fragile what?”

PLANNING YOUR FRAGILE X CLINIC VISIT

Fragile X Fact #13

Fragile X syndrome is the most common known single-gene cause of autism spectrum disorder.

FRAGILE X & AUTISM

Fragile X Fact #14

Individuals with Fragile X syndrome are prone to self-talk and perseveration so in a significant way, teaching them to use constructive mantras harnesses their natural tendency to narrate their lives. Mantras are powerful for quieting and focus.

MANTRAS ARE GREAT FOR LEARNING
MANTRAS FOR LEARNING

Fragile X Fact #15

Every day is a series of transitions. Even when you do all the right things like having a routine, knowing what to expect, using visual schedules, transitions can still be difficult. “Get to know the mosey,” you’ll be glad you did. While some individuals with Fragile X syndrome move quickly, many do not.

GET TO KNOW THE MOSEY

Fragile X Fact #16

People with Fragile X syndrome have many strengths, including excellent receptive language and exceptional imitation abilities.

FRAGILE X OVERVIEW FOR KIDS

Fragile X Fact #17

Up to 1.5 million Americans have the Fragile X mutation or premutation.

FRAGILE X PREVALENCE

Fragile X Fact #18

People with Fragile X syndrome can exhibit a variety of behaviors like shyness, anxiety, difficulty making eye contact, and short attention spans.

FRAGILE X SYNDROME

Fragile X Fact #19

Fragile X-associated primary ovarian insufficiency, often referred to as FXPOI [fax-poy], occurs in some females of reproductive age. It is a cause of infertility, early menopause, and other ovarian problems.

PRIMARY OVARIAN INSUFFICIENCY
FXPOI

Fragile X Fact #20

Females with Fragile X syndrome often have milder symptoms than males.

UNIQUE CHALLENGES FOR FEMALES
CHALLENGES FOR FEMALES
FACTS 1–10
FACTS 11–20
FACTS 21–31
BONUS FACTS