We hope everyone is excited for the new year but especially for the NFXF Advocacy Day, February 24 -25, 2020! This is something everyone can participate in, even if you cannot attend in person. Of course, we hope you can join us. However, if you cannot, you can still write a letter to your Members of Congress. Here is what to do:
- Find a picture of you with your family
- Tell them your vision, your story, and ask them to support Fragile X! Sign it with your full name and address.
- Put the picture and letter in a stamped envelope, ask your parents to help if you’re not sure how to address the envelope, and mail it!
It’s that easy! You can look up addresses at https://www.contactingcongress.org/.
A Note from Kelley Devine…
I’m excited to see for 2020 how this group continues to grow. I remember when we first started the group and it was barely recognized as a group and now, we are the faces of the NFXF. I would like to see this continue on as we get more and more members from around the world.
This past year has been pretty busy for me. I started my own photography business taking pictures and turning then into memories that people will have forever. I’ve always wanted to do photography, but it was hard because I was so busy and now being not so busy, I have the time to do this hobby of mine that turned into a business. I have been doing some traveling. I went to Hawaii in January for the first time which was a great experience! I got my first place which was a big step being on my own.
I can’t wait to see everyone at Advocacy Day and at Conference this year! I hope both have a great turnout of siblings and self advocates!!
Dillon’s Advocacy Day Advice 2020
- Professional Dress
- Tell your stories, keep them short and sweet
- Bring pictures
- Keep it clean
- Say thank you
- Keep in touch with the staffers you met on the Hill
Name: Alex Eyermann
I am a Self-Advocate
Grade: 11th grade
Favorite Food: Cheeseburger
Favorite Color: Green
Best Friends: Davion, Elise & Ethan
Favorite Movie: The Muppets
Favorite thing to do in my free time: Use my iPad