We are excited to share journal publications like this one resulting from FORWARD data. There are many more papers currently in development, and the future for Fragile X syndrome research is bright as more data is gathered.
A study on height and body mass index in Fragile X syndrome suggested that height growth decreases with age and is slightly but significantly lower than the general population by adulthood. Weight and BMI increased with age and were quite a bit higher than the general population by adulthood. Antipsychotic use was associated with higher BMI, while stimulants and anticonvulsants were associated with lower BMI. This suggests that the deficit in physical activity in Fragile X syndrome identified in FORWARD may play a role in high BMI.
Choo, T-H, Xu, Q, Budimirovic, D, et al. Height and BMI in fragile X syndrome: A longitudinal assessment. Obesity (Silver Spring). 2022; 30: 743– 750. doi:10.1002/oby.23368
About the FORWARD-MARCH Registry & Database
Since 2012, the CDC has funded four FORWARD Fragile X studies to expand understanding of Fragile X syndrome. The NFXF has been coordinating study efforts since the beginning and has been vital in ensuring its success.
FORWARD-MARCH is the next step and will collect more detailed information from participants to better understand FXS and improve the lives of children and adolescents with FXS and the lives of their families.
Below are more journal publications resulting from FORWARD data.
more from forward
FXS & Language Across the Lifespan
FORWARD // Caregiver reports tended to give lower estimates of language ability than what was found using an objectively administered assessment.
Preventive Care Services in Fragile X Syndrome
Research Summary // About nine out of 10 children and young adults with Fragile X syndrome received the immunizations recommended by CDC between birth and 18 years of age.
Featured image by Maddy Mazur from Pixabay