Bringing Your STX209 Data Home

The National Fragile X Foundation, along with the help of several professionals, has secured agreement to obtain STX209 trial participant data through a reconsent process. As a prior STX209 (arbaclofen) trial participant, you can provide permission for NFXF to obtain your data. The study team will then obtain the clinical data from these trials to link with the biological data in the NFXF Data Repository, and this de-identified data will then be available for future research.

April 9, 2021—Check back soon for full information and how to participate.

If you have questions about anything research-related, we’d love to hear from you! You can reach out to Hilary Rosselot directly, or submit your question or comment through our contact form below.

Hilary Rosselot headshot

Hilary Rosselot,
Director of Research Facilitation
(202) 747-6208

Last Updated: 11/12/2020