Researcher Grace Francis, PhD, is conducting an online survey study out of George Mason University. The survey aims to learn about factors that influence post-school expectations for individuals with an intellectual or developmental disability (IDD), including Fragile X syndrome (FXS).
About the Study
Who can participate?
Adults ages 18+ living with an IDD and individuals who have a family member with an IDD may be eligible to participate.
What will happen in the study?
If the individual qualifies and decides to be in this research study, they will complete an online survey. The survey should take about 10 minutes to complete and it can be completed in more than one sitting.
What are the good things that can happen from this research?
There are no direct benefits for completing the survey. However, researchers will use answers to understand ways in which we can improve expectations for individuals living with IDD, including FXS.
What are the bad things that can happen from this research?
We do not think that there are any risks or ways a person can be hurt by completing the survey. There may be other risks that we do not know about yet.
Will I or my child be paid to complete this study?
The online survey is anonymous, however, there is an opportunity to be entered into a raffle for $25 Amazon gift cards if you provide your email address (optional).
Interested in Participating?
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