Researchers at the University of Wisconsin-Madison and the MIND Institute, University of California Davis, are conducting a research study for female girls living with Fragile X syndrome (FXS) or autism spectrum disorder (ASD).
The study is looking at how language and executive function affect academic skills like literacy and social skills in girls living with FXS.
About the Study
Who can participate?
This study is enrolling females living with FXS or ASD, ages 8-12.
What will happen in the study?
If the individual qualifies and decides to be in this research study, they will come out to one of our research sites for 2 visits over 2 years.
The following is a list of some of the activities that will happen during the study:
- Participants will take part in activities looking at cognition, language, and other skills
- Caregivers will be asked to participate in interviews and answer questionnaires about their daughter
What are the good things that can happen from this research?
You may not directly benefit from participating in this research study; however, caregivers will receive a report after completing the study including their daughter’s assessment results and general observations. Additionally, this study will help researchers learn more about how language and executive function affect academic and life skills in girls living with FXS and ASD.
What are the bad things that can happen from this research?
Participants may become anxious or tired when asked study questions or are completing study tasks.
There may be other risks that we do not know about yet.
Will I or my child be paid to complete this study?
Participants receive up to $225 for completing the study.
Travel-related expenses can be reimbursed depending on project resources and university policy, including mileage, flights, hotel, and/or meal reimbursement. Please contact the site coordinator for more information on payment and reimbursement.
Interested in Participating?
Our Most Recent Opportunities
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