The NFXF Blog
Are You a Parent or Caregiver to a Child with Fragile X Syndrome?
The University of Newcastle, Australia is interested in your experiences regarding the diagnosis of your child. We are also looking at how you told your child/ren about their condition, and how they reacted. If you have not yet told your child, we are interested in what your concerns are around telling them about the syndrome.
Your Vote Matters in the Fragile X World
Jeffrey Cohen Director of Government Affairs & Advocacy In case you hadn’t noticed there’s a big election coming up. The upcoming presidential election is sure to have an impact on our country, your locale [...]
Communicating Through Behavior
Source: , Summer 2003 Marcia Braden, PhD As I was pondering what to write about it occurred to me just how adept people with Fragile X syndrome are at telling us what they need [...]
What Did We Learn In Miami?
Robert Miller Executive Director National Fragile X Foundation In the months to come, the NFXF will continue to roll out the latest information from the 13th International Fragile X Conference. This was not [...]
'Fragile X Syndrome' Researchers Boost Social Skills in Mice
New treatment method helped brain process chemicals similar to marijuana in animal study TUESDAY, Sept. 25 (HealthDay News) -- Scientists in search of greater understanding of Fragile X syndrome, a genetic condition tied to [...]
Exciting Media Attention About Fragile X Clinical Trials
The NFXF is pleased to see the media attention surrounding the latest news resulting from clinical trials for Fragile X syndrome treatments. Two members of the NFXF’s Scientific and Clinical Advisory Committee, Dr. Randi Hagerman, the NFXF’s co-founder, and Dr. Elizabeth Berry-Kravis, also a member of the NFXF’s Board of Directors, have been receiving prominent mention. The NFXF has been pleased to be able to assist its corporate partner, Seaside Therapeutics, with recruitment for this trial and others.
Dr. Peter Todd: Molecule Holds "Significant Promise" but "Still has a long ways to go"
Dr. Peter Todd, assistant professor in Neurology and co-director of the FX clinic at the University of Michigan thinks the study findings hold significant promise. “This is an interesting finding of a compound that has [...]
Positive Exposures of Fragile X
Professional photographer Rick Guidotti, of Positive Exposures, shared his beautiful photos of the attendees at the Conference. All rights belong to the National Fragile X Foundation. Feel free to download for personal use. Please contact [...]