The NFXF Blog
The 2015 NFXF Let ‘Em Know 5K!
Our annual “Let 'Em Know 5K” is coming back - a virtual event that brought together people from all over the country! For the past two years, this event to raise awareness and funds for [...]
Fragile X Families Fostering Real Relationships
The world can look like a lonely place when you first learn that Fragile X runs in your family. That is why one of the first things we tell people who receive a diagnosis is [...]
How an Adaptive Physical Education Class Should Be “Run”
An adaptive physical education class like this one set up in your school would be a wonderful program that every student could benefit from.
AZ: Family Brunch & Social
Fragile X Family Brunch in the Park Date: April 25, 2015 Time: 10:00 AM - 12:00 PM Location: Desert Breeze Park660 North Desert Breeze Blvd E Chandler, AZ 85226 We will be in the Mesquite [...]
AZ: Family Brunch & Social
Fragile X Family Brunch in the Park Date: April 25, 2015 Time: 10:00 AM - 12:00 PM Location: Desert Breeze Park660 North Desert Breeze Blvd E Chandler, AZ 85226 We will be in the Mesquite [...]
GA: Date Night
Greater Atlanta Fragile X Date Night Date: March 13, 2015 Time: 08:00 PM Location: Top Golf Entertainment10900 Westside Parkway Alpharetta, GA 30009 Hosts: Greater Atlanta Fragile X Cost: Please note this social event is not [...]
Boston Children’s: Interested in Fragile X Sensory Processing Research?
This research study is looking at the relationship between sensory processing skills (response to sensory experiences) and the development of daily life skills (adaptive skills).
UNC-Stanford Project on Brain Development in Fragile X Syndrome Receives $5M Grant Award
Carolina Institute for Developmental Disabilities (CIDD) at the University of North Carolina at Chapel Hill and the Center for Interdisciplinary Brain Sciences Research (CIBSR) at Stanford University The Carolina Institute for Developmental Disabilities (CIDD) [...]
PA: Educational Conference
Navigating Transition to Adulthood for Fragile X Families Date: February 28, 2015 Time: 08:30 AM - 01:30 AM Location: Elwyn, Inc.111 Elwyn Road Elwyn, PA 19063 Elwyn Conference Center (third floor) Hosts: Fragile X Southeast [...]
Katie Couric to feature Fragile X on Yahoo News!
Katie Couric and her news team contacted us about featuring Fragile X on Yahoo News with Katie Couric. We’re excited to announce that they will be airing the piece soon! The news piece features interviews with NFXF Co-Founder Dr. Randi Hagerman, NFXF Board member Brain Silver and his wife Shari...
We’re Going Virtual: Update your Address Books!
The National Fragile X Foundation is closing the doors to our brick and mortar office, and our new mailing address will be located in Washington, DC. So please, update your address books! The biggest reason [...]
Fragile X Syndrome and Autism Spectrum Disorder: Similarities and Differences
It is important to note that it is more common for a child to be diagnosed with ASD and then to receive an additional diagnosis of FXS.