Research Update Meeting

March 22, 2014 1-4 P.M.

Dr. Elizabeth Berry-Kravis will speak about current and upcoming research opportunities! The event is being hosted by Avis Primack

51 Old Oak Drive
Buffalo Grove, IL 60089

The meetings space will be in the meeting room of the condo building. Look for signs upon arrival.

Please RSVP to Avis at 847-465-1245 or email or

Scholarship Opportunities for the 14th Annual International Conference

We have developed a scholarship program for attendance to the International Fragile X Conference in Orange County, CA. The deadline for applications submissions is March 31, 2014. For more information or a copy of the application, email

Calling All Runners: Be a part of Xtra Miler’s!

We were again selected as a participating charity for the 2014 Naperville Half/Marathon. Last year, our team of 10 raised nearly $14,000! We have secured additional charity race registration this year.

Email or more information about the race, or for a copy of the application to be a part of an incredible team (Dr. Berry-Kravis is running again this year)!

Do you know about the ARC of IL?

This is a wonderful program that can help families receive support to attend/receive education. You must submit at least 30 days prior to the event. Check out the Consumer Stipend Project page on their site for additional information and the application.

Sponsorship/Donation Opportunities Available

We are seeking sponsors for our 2014 Fragile X Charity Golf Classic. The event will take place August 8, 2014 at Mistwood Golf Club, Romeoville, IL. We are also in need of items for Prizes/Auctions/Raffle. The 2014 registration will open in the spring. For up-to-date information check our Facebook page or visit

How can you help?

Summer Family Fun Event
Suggestions or ideas are welcome for a family friendly event this summer. White Sox/Cubs game? Meet at the zoo? Email with ideas!

Parent/Caregiver Night Out
We are looking to start doing a quarterly night out. We would like to rotate locations throughout the Chicagoland area. If you know of a great place, please email Missy at