18th NFXF International Fragile X Conference

The NFXF International Fragile X Conference is the largest of its kind in the world. This biennial event brings professionals, caregivers, self-advocates, and family members together—a truly unique experience for a community all-too-familiar with the question: Fragile what? In addition to providing the opportunity for friendship and solidarity, sessions focus on strategies and techniques for living with Fragile X, as well as providing access to emerging research and opportunities.


Conference Information

JULY 14–17, 2022 | SAN DIEGO

If you’re already registered (or are still deciding?), check out our newly published agenda and our roster of illustrious presenters and speakers. For any questions or help, please contact us, and if you’re not already on our email list, be sure to sign up for conference updates.

We’re looking forward to seeing you at the San Diego 18th NFXF International Fragile X Conference!

Already Registered?

We can’t wait to see you!

Now available:
Conference Agenda
Speakers & Presenters

Still Deciding?

Keep reading …

On this page, you’ll find:
Registration Ticket Prices
Hotel Details FAQs


Registration Open Through July 10

We offer various packages for both in-person and virtual attendees:

  • Connect with other attendees, sponsors, and exhibitors — whether attending in person or virtually
  • Live or streaming (virtual) onsite sessions, including Keynotes, Industry Updates, Breakout Sessions, Panel and Poster presentations
  • Live onsite events in San Diego, including Thursday Kick-Off Reception and Saturday Farewell Party
  • Live and prerecorded session recordings, unlimited access opens within two weeks after the conference through through Sept. 30, 2022
    Note: Sibling and Self Advocate sessions will not be recorded. Poster presentations will also not be recorded, however, presenters will each supply a self-recorded presentation that will be included.

See below for a list of amenities included for each ticket type. For all information including age restrictions and other important details, please visit our registration page.


Ticket Types and Amenities

• • • • • • • • • • •
Virtual Single-Day Onsite Farewell Party Add-On
Onsite Sessions × × Fri. or Sat.
Live Breakout Sessions × Fri. or Sat.
Thursday Kick-Off Reception ×
Saturday Farewell Party × ×
Recordings Post-Conference × × Fri. or Sat.

Regular Onsite

  • 1 Individual — $500
  • 1 Family of Two — $950
  • 1 Professional — $575
  • 1 Self-Advocate — $450
  • 1 Sibling — $450

Saturday Farewell Party Add-On

  • 1 Individual (Add-on) — $75


  • 1 Individual — $350
  • 1 Family of Two — $500

Single-Day Friday Onsite

  • 1 Individual (regular) — $350

Single-Day Saturday Onsite

  • 1 Individual (regular) — $350

FULL-TIME COLLEGE AND UNIVERSITY STUDENTS: You may request a discount promotion code. Using your school student email address, please email a copy of your current dated student ID and proof of full-time registration to conference@fragilex.org.

Please Note: All prices are good through June 30, 2022. For all information including age restrictions and other important details, please visit our registration page.


Hotel Details

Our negotiated room rate deadline has passed. Limited room types and dates may be available at the online link↗. However, if you have trouble finding what you need we recommend contacting the hotel directly at 1-800-772-8572 to inquire about current availability and rates.

Town and Country San Diego
500 Hotel Circle North
San Diego, CA 92108

Booking Information: 

  • Room Rate: Per night fee + 12.5% in taxes/fees.
  • Deposit: A one-night deposit is required, and is fully refundable up to 48 hours — by 6pm— in advance of your arrival.
  • Children under 18: No additional charge for children 18 and under staying in their parent’s room.
  • Parking: $10.00 per night

Also see:


Child Care

The registration deadline for child care has passed (May 18, 2022).

Thanks to our generous supporters, childcare rates are subsidized at 50% of the actual costs with KiddieCorp, a licensed, professional child-care service provider.

Also, see the KiddieCorp Parent’s Guide↗ for their current health and safety measures.

Exhibitor Information

Are you interested in having an exhibit booth at the conference? As an exhibitor, you will have two days to showcase your staff, services, and research opportunities. You’ll will reach nearly 1,000 parents, researchers, professionals, and advocates in attendance, plus an additional 200+ virtual attendees from 50+ countries around the world.


Conference FAQs

The NFXF is committed to keeping our conference attendees safe during their time at the conference by adhering to all local and state guidelines.

  • All attendees will be able to self-identify their social distancing comfort levels with a red, yellow, or green indicator on their name badges.
  • Every effort will be made to maximize distances between seats during general and breakout sessions.
  • Food and beverage events (Kick Off Reception on Thursday, Farewell Party on Saturday) will be held in outdoor spaces to allow for maximum enjoyment and comfort.
  • While masks are currently optional, all attendees are encouraged to wear them if they prefer.
  • We are closely monitoring the mandates regarding COVID-19 and will update our safety practices as needed.

Please see the Town and Country hotel health and wellness commitment↗ for more details.

The NFXF is currently planning for an in-person conference in San Diego with an additional virtual option for those unable to attend in person.

After May 27, 2022, we regret that no refunds are possible. However, attendees may transfer an in-person paid registration to another attendee at no charge.

If you’ve already canceled: Cancellation requests were subject to a $50/person administration fee. All refunds, less the $50 per person administration fee, will be processed within 30 days after the cancellation request is confirmed.

In the event COVID-19 mandates change and prevent us from holding our in-person event, we will host the entire event virtually. All previously registered attendees will automatically have their in-person paid registration applied to the virtual event.

The NFXF is adhering to all local and state COVID-19 health and wellness guidelines. Please use care when booking travel arrangements. The NFXF is not responsible for airfare or other travel reimbursements should public health guidelines require cancellation of the in-person conference.

Also see COVID-19 information from the CDC↗.

5 Reasons to Stay at the Town and Country San Diego:

  1. Negotiated pricing. We negotiate the best possible room rate by contracting for a block of rooms at the conference hotel. Typical room rates would be significantly higher at the same hotel without this advantage. Note: The negotiated room rate is available until the room block is sold out, or Monday, June 20, 2022, whichever comes first.
  2. Extend your stay. The special rate is available before and after the conference dates. The room block is available from July 11-July 18, 2022, allowing you to make a special vacation out of the conference at a significant savings.
  3. The hotel staff is briefed on Fragile X. They are prepared on how to best support the needs of families.
  4. Network with other attendees. Including professionals, caregivers, parents, and self-advocates.
  5. It’s easy and convenient. No worrying about getting to sessions on time, taking a quick break between sessions, or looking for a parking space.

YES!! This is a family-friendly event. Non-registered family members are welcome to join the Kick-Off Reception on Thursday, July 14, 2022, and enjoy the hotel amenities and the many iconic San Diego attractions. However, due to space limitations and our commitment to the health and safety of all registered attendees, ONLY registered attendees (including children and adults) are permitted in the conference space and sessions.

Only registered attendees are permitted in the conference space and sessions, due to space limitations and our commitment to the health and safety of all attendees.

Regular registration (on-site) includes Thursday’s Kick-Off Reception, access to all conference and breakout sessions, Saturday’s Farewell (an outdoor California-casual event), and access to all live and prerecorded recordings* after the conference. Not to mention the priceless experience to meet other families, self-advocates, and professionals This is a can’t miss event!

Virtual registration includes access to all conference sessions via an app and access to all live and prerecorded recordings* after the conference.

*Note: Sibling and Self Advocate sessions will not be recorded. Poster presentations will also not be recorded, however, presenters will each supply a self-recorded presentation that will be included.

Visit our registration page↗ for more information and to register.

Sessions are not monitored, and it is the responsibility of the registered parent, legal guardian, or caregiver to provide support in the self-advocate sessions. Self-advocates 18 and older who wish to attend sessions alone must be independent, as these sessions are not monitored regarding the comings and goings of participants.

Many of the iconic local attractions, shows, and exhibits can be found at San Diego City Pass↗ and Visit California↗.

Also learn more about the Town and Country amenities and surrounding area↗.

We have added a virtual experience option, see more information on this page or visit our registration page↗.

For families who reside in California, the NFXF has been approved as a Vendor with the San Diego Regional Center↗. Families that live in the San Diego Regional Center service area may contact their service coordinator directly to inquire about funding support to attend the 18th NFXF International Fragile X Conference. For those families who are not receiving services from this Regional Center, contact your local Regional Center to inquire about a “courtesy vendorization.”

2022 Scholarship Opportunities

The scholarship application deadline has passed. Scholarships are made available thanks to our Community Support Network chapters and community partners, supporters, and private donors to assist individuals, families, self-advocates, or siblings who have not previously attended an NFXF International Fragile X Conference.

Please note: This scholarship deadline has passed.

Reduced Registration Conference Scholarship

Includes a reduced conference early bird registration fee. Priority is given to first-time NFXF International Conference attendees. Other applicants will be considered as funding permits. (Note: This scholarship does not include funding for travel or accommodation expenses).

Please note: This scholarship deadline has passed.

This scholarship is offered in memory of Shannon Adamson, a young woman living with Fragile X known to her friends as a friendly, outgoing person. Like many other self-advocates, she enjoyed being able to spend time and reconnect with friends at the conference and learning new things about Fragile X at the self-advocate sessions. Her sudden passing after the 2016 International Fragile X Conference inspired the “Shannon’s Wonder Women Scholarship,” which aims to help other young women living with Fragile X syndrome realize their maximum life potential. 

Please note: This scholarship deadline has passed.

The Arthur S. Mintz Memorial Conference Scholarship was established in memory of a kind-hearted, thoughtful man who befriended a young man in his community who has Fragile X Syndrome just because he thought it might be helpful to the family and good for the young man. 

Arthur “Artie” Mintz was the type of person who, when presented with a problem by his friends, would try to help them. He even went so far as to help a young woman whose family he knew seize an opportunity to attend Julliard when her family could not afford it. Artie also volunteered his time at a school for “at risk” girls during his frequent trips to Israel for his work with school administration. Artie was truly a selfless man and would never take credit nor brag about his good deeds.  Many stories became public knowledge only after Artie’s passing in early 2017, though one was known by most — his relationship with the young man with Fragile X syndrome. 

For 4 ½ years, they spent most Friday’s together after school hours doing whatever the young man wanted to do and, occasionally, something Artie wanted to introduce to the young man’s life.  This relationship developed into something very special for both men but the success stems from Artie’s thirst for knowledge about Fragile X Syndrome.  He asked the family many questions and did his own research.  He began to speak with his many friends in the off chance someone might have additional information which would be helpful to his understanding and/or the family.  In large part, that is why so many in his life knew about the relationship.  Everyone involved recognize Artie’s efforts made a tremendous difference and had a positive impact.     

It is because of this and because those who have been touched by him, wish everyone were fortunate enough to have an Artie Mintz in their life that this scholarship was created.  The Arthur S. Mintz Memorial Conference Scholarship covers the registration and hotel cost of attending the biannual NFXF International Conference Scholarship.  It will be awarded to families and/or self-advocates who are first time attendees and who, without this scholarship, would be unable to attend.  The conference provides the opportunity to better understand Fragile X Syndrome and related disorders, learn what is happening in research, connect with the greater Fragile X community and make some new friends.  Just like a friendship with Artie, the conference has a positive impact on and makes a difference in the lives of those living with Fragile X. 

A Look Back at the 17th International Fragile X Conference

MAY 29–30, JUNE 27, JULY 22, 2020 | VIRTUAL

Our 2020 conference was our first virtual conference due to COVID-19. It was a difficult time as we all know, but it turned out to be one of our most successful conferences ever. As always, the top experts in the field of Fragile X delivered all the latest news and research.

Click the button below to get on-demand access to 19 of the 2020 conference sessions from our last conference in 2020. Or, check out the 2020 itinerary to get a look at the depth and breadth of our conferences.

National Fragile X Foundation San Diego - 18th International Fragile X Conference


Regular registration ends June 30. Click below to learn more and register.



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Thank you to our sponsors to date!

Zynerba Pharmaceuticals conference sponsor logo display
Tetra Therapeutics 17th NFXF International Fragile X Conference sponsor logo
International Fragile X Premutation Registry
Healx Therapeutics 18th NFXF International Fragile X Conference sponsor logo
Fragile X Association of Southern California
NFXF Heartland Chapter
NFXF Northern CA Chapter
NFXF Southeast PA Chapter
Green Tree Jewelry
NFXF Houston Chapter
Fragile X Alliance of Ohio
Fragile X Resource Center of Missouri
NFXF Greater NYC Chapter
NFXF Minnesota Chapter
NFXF Minnesota Chapter
HDH Wine Co
Tech Data
National Fragile X Foundation Wisconsin Chapter
Fragile X Association of New York logo
Fragile X Association of Georgia logo
Laughing Glass Cocktails logo
Forge Biologics

Archived Conference Information

17th International Fragile X Conference (2020)

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