Note: All bio information is as of the date of the conference.

Leonard Abbeduto, PhD
Professor & Director, UC Davis MIND Institute

• Transitioning to Independence in Adulthood: What Helps? What Are the Barriers? — Panel
• Self-Advocate Session: Transitioning to Independence in Adulthood: What helps? What Hurts?

Emily Allen, PhD
Assistant Professor, Emory University

• Health Concerns for Women Who Carry an FMR1 Premutation — Presentation
• (13) The Diagnostic Experience of Women with Fragile X-Associated Primary Ovarian Insufficiency (FXPOI)
• Fragile X Premutation Discussion — Panel

Jennifer Barber
Project Coordinator, National Fragile X Foundation

• Panel Discussion — Females with Fragile X Syndrome

Elizabeth Berry-Kravis, MD, PhD
Professor, Rush University Medical Center

• Keynote — Clinical Trials in Fragile X Syndrome
• Panel Discussion — Clinical Trials in Fragile X Syndrome Questions & Answers
• Interpreting Clinical Trial Headlines and Announcements in Fragile X Syndrome
• Panel Discussion — Research Landscape
• (44) Benefit of BPN14770 for Cognition, Language and Daily Function in Adults with Fragile X Syndrome: A Randomized, Placebo-Controlled, Phase 2 Clinical Trial
• (45) FXLEARN Trial: Effects of AFQ056 on Language Learning in Fragile X Syndrome
• Medication for Fragile X: Anxiety, Irritable Behaviors, Aggression
• Seizures in Fragile X Syndrome: Associations and Longitudinal Analysis of a Large Clinic-Based Cohort
• The Association Between Mosaicism Type and Cognitive and Behavioral Functioning Among Males with Fragile X Syndrome
• Panel Discussion — Behavior
• Panel Discussion — Medications

Laurie Bridges
NFXF Houston Chapter Leader, NFXF Board Member, National Fragile X Foundation

• Panel Discussion — Research Landscape
• Panel Discussion — Females with Fragile X Syndrome

Will Bridges
Unicat Catalyst Technologies – Sales Director (Americas), FX Dad from Houston, Texas

• Dads Helping Dads

Jeanine Coleman
Associate Professor, Regis University

• (14) Managing Powerful Emotions for Young Children with FXS: Integrated Preschool Social & Emotional Skills Groups
• Promoting Inclusive Early Childhood Environments for Young Children with Fragile X Syndrome
• Panel Discussion — Education Question & Answers

Kerrie Lemons Chitwood, PhD, CCC-SLP
Assistant Professor, CSU Monterey Bay

• Assistive Technology: Tackling the Trends and the Tried & True
• No Tears or Fears in the School Age Years: Make the Most of Your Team’s Collaboration

Carol Delahunty, MD
Developmental and Behavioral Pediatrics, MetroHealth

• Improving Sleep in Children and Youth with Fragile X Syndrome

Kelley Dunphy
NFXF Sibling and Self-Advocate Network (SSAN)

• Sibling & Self-Advocate Welcome Session
• Panel Discussion — Sibling Perspective

Craig Erickson, MD
Professor, Cincinnati Children’s Hospital Medical Center

• Keynote — Clinical Trials in Fragile X Syndrome
• Panel Discussion — Clinical Trials in Fragile X Syndrome Questions & Answers
• Interpreting Clinical Trial Headlines and Announcements in Fragile X Syndrome
• Panel Discussion — Research Landscape
• Fragile X Protein Level as a Mediator of Treatment Response in Early Phase Target Engagement Drug Studies
• (41) Pilot Study of BAER-101, a selective GABA A alpha 2,3 agonist in adults with fragile X syndrome
• (42) Single Dose Racemic Baclofen EEG-Focused Target Engagement Across Species in Fragile X Syndrome
• Medication for Fragile X: Anxiety, Irritable Behaviors, Aggression
• The Effect of Medications on Longitudinal Behavior and Symptoms in Fragile X Syndrome
• Panel Discussion — Behavior
• Panel Discussion — Medications

Matthew Fasciano

• Panel Discussion — Self Advocate

Jason Fishman
Fragile X Resource Center of Missouri

• Panel Discussion — Self Advocate

April Forehand

• Panel Discussion — Self Advocate

Luke Alan Forehand

• Panel Discussion — Self Advocate

Kara Frech
Board Member, NFXF Board

• Panel Discussion — Research Landscape

Abigail Gaunt
Assistant Dean of Students, Tulane Law School

• Panel Discussion — Sibling Perspective

Dinah Godwin
Director of Social Work, Meyer Center for Developmental Pediatrics and Autism, Texas Children’s Hospital/Baylor College of Medicine

• Navigating the Challenges of Puberty and Adolescence for Youth with Fragile X Syndrome

Barbara Haas-Givler, MEd, BCBA
Director, Education and Behavioral Outreach, Geisinger Fragile X Clinic

• Strategies to Improve Executive Functioning Skills for School-Aged Females with Fragile X
• Panel Discussion — Females with Fragile X Syndrome
• Setting the Stage for Success: Effective Strategies to Promote and Support Social Skills

Randi J. Hagerman, MD
Medical Director Fragile X Research and Treatment Center, UC Davis MIND Institute

• Keynote — Clinical Trials in Fragile X Syndrome
• Panel Discussion — Clinical Trials in Fragile X Syndrome Questions & Answers
• Panel Discussion — Research Landscape
• Panel Discussion — Fragile X and Associated Tremor/Ataxia Syndrome (FXTAS)
• Premutation Concerns
• Panel Discussion — Fragile X Premutation
• Panel Discussion — Behavior
• Panel Discussion — Medications

Deborah Hall
BLAAC PD Site PI, RUSH University

• Diagnosis and Treatment of Fragile X-Associated Tremor Ataxia Syndrome
• Panel Discussion — Fragile X and Associated Tremor/Ataxia Syndrome (FXTAS)
• Fragile X Gray Zone Alleles Are Associated With Signs of Parkinsonism and Earlier Death
• Panel Discussion — Fragile X Premutation

Holly Harris
Texas Childrens Hospital

• Navigating the Challenges of Puberty and Adolescence for Youth with Fragile X Syndrome

Laura Greiss Hess, PhD, OTR/L
Associate Professor, PhD, OTR/L, Dominican University of California

• Assistive Technology: Tackling the Trends and the Tried & True
• No Tears or Fears in the School Age Years: Make the Most of Your Team’s Collaboration

David Hessl PhD
Professor, MIND Institute UC Davis

• Panel Discussion — Research Landscape
• Panel Discussion — Fragile X and Associated Tremor/Ataxia Syndrome (FXTAS)
• (72) The International Fragile X Premutation Registry: Building a Resource For Research and Clinical Trial Readiness
• Observable Signs of Anxiety in Individuals with Fragile X Syndrome: Caregiver and Self-Advocate Perspectives
• Panel Discussion — Fragile X Premutation

Anne Hoffmann
Assistant Professor & Speech-Language Pathologist, Rush University Medical Center

• Encouraging Early Communication
• No Tears or Fears in the School Age Years: Make the Most of Your Team’s Collaboration
• (37) Analysis of a Repetitive Language Coding System: Comparisons between Fragile X Syndrome, Down Syndrome, and Autism
• Panel Discussion — Education Question & Answers

Susan Howell, MS, CGC, MBA
Certified Genetic Counselor, Children’s Hospital Colorado

• (22.5) Primary Care in the World of Fragile X
• Panel Discussion — Females with Fragile X Syndrome

Dillon Kelley
Co-Leader, Sibling and Self-Advocate Network

• Sibling & Self-Advocate Welcome Session

Tracy King, MD, MPH
Medical Officer, NIH/NICHD

• Panel Discussion — Research Landscape

Jessica Klusek, PhD CCC-SLP
Associate Professor, University of South Carolina

• Anxiety, But Not Depression, Predicts a Longitudinal Increase in Functional Tremor Symptoms in Women with the FMR1 Premutation During Midlife
• Transitioning to Independence in Adulthood: What Helps? What Hurts?
• Self-Advocate Session: Transitioning to Independence in Adulthood: What helps? What Hurts?

Reymundo Lozano, MD, MS
Assistant Professor, Mount Sinai

• (61) Parent and Caregiver Perspectives Towards Cannabidiol as a Treatment for Fragile X Syndrome
• (62) Exploring parents’ concerns regarding long-term support/living arrangements for their children with FXS
• Panel Discussion — Medications

Emily Mack
Board President, National Fragile X Foundation

• Panel Discussion — Research Landscape

Jean Luan McColl
Emory University

• Panel Discussion — Research Landscape

Bonnie McKinnon, MMSc
Genetic Counselor, Northside Hospital in Atlanta, Georgia

• The Diagnostic Experience of Women with Fragile X-Associated Primary Ovarian Insufficiency (FXPOI)

Robert Miller
National Fragile X Foundation

• Panel Discussion — Self Advocate

Amie Milunovich
FORWARD National Coordinator, National Fragile X Foundation

• Panel Discussion — Research Landscape
• Introduction to FORWARD
• Recent Findings from the FORWARD Project — Part 2

Karen Regan
Professional Research Assistant, Children’s Hospital Colorado

• Starting and Monitoring Medications in Fragile X

Debra Reisinger, PhD
Assistant Professor of Clinical Pediatrics, Indiana University School of Medicine

• Common Behaviors and Available Treatments Across the Lifespan

Jessica Rogers
Texas Fragile X Association

• Panel Discussion — Self Advocate

Hilary Rosselot
Executive Director, Research Facilitation Lead, National Fragile X Foundation

• Panel Discussion — Clinical Trials in Fragile X Syndrome Questions & Answers
• Panel Discussion — Research Landscape
• Keynote — Industry Updates
• Panel Discussion — Fragile X Premutation
• Panel Discussion — Medications

Lauren Schmitt, PhD
Assistant Professor, Cincinnati Children’s Hospital Medical Center

• Clinical Utility of Optimized Fragile X Protein Assay
• (54) Lessons from Taking a Second Look: Clinical Trial of Acamprosate in FXS
• How Many Times Is He Going to Ask That? Perseverative Questioning and Other Behavioral Inflexibility in Fragile X Syndrome — What It Looks Like and How to Deal with It
• Panel Discussion — Behavior

Rebecca Shaffer
Director of Psychological Services at Cincinnati Fragile X Treatment and Research Center, Cincinnati Children’s Hospital Medical Center

• Emotion Dysregulation in Fragile X Syndrome
• Stay Calm and Regulate!
• Panel Discussion — Females with Fragile X Syndrome

Hailey Silver, MA
Clinical Psychology MA Graduate, Teachers College Columbia University

• (51) The Impact of the COVID-19 Pandemic on School-Aged Children with Fragile X
• Panel Discussion — Sibling Perspective

Josee Slama
South Dakota State University

• Panel Discussion — Sibling Perspective

Linda Sorensen
Conference Director, former Executive Director, National Fragile X Foundation

• Panel Discussion — Education Question & Answers
• Panel Discussion — Behavior

Diane Southard
Parent

• Sibling & Self-Advocate Welcome Session

Tracy Murnan Stackhouse
Executive Director, Co-founder and Occupational Therapist, Developmental FX

• Hands-On Sensory & Body-Based Self-Regulation for Managing Hyperarousal & Anxiety in FXS
• (20) Achieving a Transdisciplinary Strengths-Based Approach to Learning and Living
• Using Visuals to Support Daily Function
• Panel Discussion — Education Question & Answers
• Movement & Relaxation
• Panel Discussion — Behavior

Tess Swayne

• Panel Discussion — Self Advocate

Nicole Tartaglia
Associate Professor of Pediatrics, Developmental-Behavioral Pediatrician, University of Colorado School of Medicine, Children’s Hospital Colorado

• Starting and Monitoring Medications in Fragile X
• (18) Moms with a Full Mutation
• Keynote — A Day in the Life of a Fragile X Doctor
• Panel Discussion — Females with Fragile X Syndrome
• Medical Problems in Fragile X Syndrome: FORWARD Results From Over 1,400 Participants Age 0-21 with the Fragile X Full Mutation
• Cognitive and Adaptive Functioning Profiles of Individuals with FXS Across the Lifespan
• Panel Discussion — Medications

Julie Taylor
Associate Professor, Vanderbilt University Medical Center

• Transitioning to Independence in Adulthood: What Helps? What Hurts?

Angie Thurman
UC Davis, MIND Institute

• Transitioning to Independence in Adulthood: What Helps? What Hurts?
• Self-Advocate Session: Transitioning to Independence in Adulthood: What Helps? What Hurts?

Peter Todd
U Michigan

• Panel Discussion — Fragile X and Associated Tremor/Ataxia Syndrome (FXTAS)
• Start With the End in Mind: Translational Frameshifting and Ribosomal Quality Control in CGG Repeat–Associated Neurotoxicity

Peyton Toman
University of Tampa

• Sibling and Self-Advocate Dance Practice
• Sibling & Self Advocate Dance Session — Part 2

Angel Wang
Clinic Coordinator, Rush University

• Panel Discussion — Research Landscape

Missy Zolecki
Director, Community Empowerment, National Fragile X Foundation

• Panel Discussion — Research Landscape
• Medication for Fragile X: Anxiety, Irritable Behaviors, Aggression

Paige Zolecki
University of Florida

• Sibling and Self-Advocate Dance Practice
• Sibling & Self Advocate Dance Session — Part 2
• Panel Discussion — Sibling Perspective