Congressional Fragile X Caucus

Mission: The Congressional Fragile X Caucus will increase awareness of the public and private efforts underway to treat patients and develop therapies, and will identify ways Congress and federal departments can better serve families impacted by Fragile X.

Goals: The caucus will promote public policies to enhance the quality of life of individuals with Fragile X by:

  • Supporting an increased investment in federal resources for Fragile X research and public health initiatives, as well as greater coordination and resource sharing to maximize this investment.
  • Eliminating barriers to economic opportunity in employment and in programs that promote savings and investment.
  • Raising expectations and improving outcomes in education.

The Congressional Fragile X Caucus strives to make a positive difference in the lives of families struggling with a Fragile X-associated disorder and works closely with the National Fragile X Foundation. Learn more about the NFXF advocacy efforts and join the team.

The co-chairs of the Fragile X Caucus are:

Rep. Gregg Harper (MS-03)

Scot Malvaney
Policy Director
307 Cannon House Office Building
Washington, DC 20515

Rep. Eliot Engel (NY-17)

Catherine Rowland
Senior Policy Advisor
2161 Rayburn House Office Building
Washington, DC 20515