Join the NFXF Connecticut Chapter for a Virtual Fragile X Dad's Chat – All Dads Welcome! Although our meetings are always open discussion with no particular topic, this month we will have 2 special [...]
Join the NFXF on May 13, 2025 as they host Kelly Piacenti of MassMutual SpecialCare and Jerry Hulick of The Washington Group Special Care Planning Team for a webinar and panel discussion on special needs financial planning.
Please join us for an informational webinar for professionals about funding opportunities for the Peer Reviewed Medical Research Program (PRMRP). We will be joined by Kathryn J. Argue, Ph.D., Interim Program Manager, on May [...]
Ride With Us! Charity bicycle ride to benefit the National Fragile X Foundation, Heartland Chapter, which supports families affected by Fragile X Syndrome in Iowa and South Dakota. Event Details Date: Saturday, June 7, [...]
The NFXF recently released an updated Fragile X-Associated Primary Ovarian Insufficiency Treatment Recommendation. Join the authors Heather Hipp, MD, Emily Allen, PhD, and Cecelia Bouska, LCGC, for a webinar, where they will discuss features and symptoms of FXPOI, risk prediction, and treatment strategies.
Please join us Saturday, July 12th at Cincinnati Children's Hospital for the 2025 Cincinnati Fragile X Family Conference! Top experts will be presenting on a broad range of topics. Topics include, but are not limited [...]
Greater Chicago area X-Strides walk for Fragile X awareness taking place July 19 at 9:00 AM at Gallery Park.
Join the NFXF on August 5, 2025 as they host Kelly Piacenti of MassMutual SpecialCare and Jerry Hulick of The Washington Group Special Care Planning Team for a workshop on creating a letter of intent and how it supports special needs planning by guiding future caregivers with clear care instructions.
