NFXF Webinar Series- 2024 Females with FXS
ZoomJoin us as we host a panel discussion with Barb Haas-Givler, MEd, BCBA, Cora Taylor, Nicole Tartaglia, MD, Tracy Jordan, PhD, and Vicki Wilkins, MD all about females with Fragile X syndrome.
Free
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Greater Chicago Tree Decorating
Brookfield Zoo 3300 Golf Rd, Brookfield, IL, United StatesThe NFXF Greater Chicago Chapter has sponsored a tree for the 43rd annual Holiday Magic at Brookfield Zoo. Join them and other families as they decorate a tree to promote Fragile X awareness.
Free
Virtual Education – Holy Hormones! Let’s Talk About Puberty
ZoomThe Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the team of developmental-behavioral pediatricians for an upcoming virtual discussion on puberty in children with developmental diagnoses.
Free
NFXF Webinar Series: Navigating Challenging Behaviors 2024
Virtual LocationJoin us as we host a panel discussion with Tracy Stackhouse, MA, OTR/L, Lauren Moskowitz, PhD, Jennifer Epstein, PsyD, and Missy Zolecki all about navigating challenging behaviors.
Virtual – SSAN Friendsgiving Celebration
Join the Sibling and Self-Advocate Network (SSAN) virtually, for a Friendsgiving Celebration! They are grateful for each of you! They will play a game and create a Turkey-themed Charcutterrie board designed by Raddish© that you [...]
NFXF Webinar Series: Gene Therapy & the FXS Community: A Review of Community Surveys
ZoomJoin us as we hear from Anna De Sonia, Sarah Eley, Dr. Rey Lozano, Vivian Chen, and Dr. David Hampson as they discuss the preliminary results from their community surveys on gene therapy.
Free
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Save the Date – NFXF Advocacy Day 2025
Washington, D.C. DC, United StatesJoin us for the NFXF Advocacy Day 2025. This annual in-person event will bring together families, self-advocates, siblings, caregivers, doctors, and researcher who are a collective voice dedicated to elevating awareness, educating, and showcasing actionable ways to support the Fragile X community.
$40