NFXF Webinar Series- 2024 Females with FXS
ZoomJoin us as we host a panel discussion with Barb Haas-Givler, MEd, BCBA, Cora Taylor, Nicole Tartaglia, MD, Tracy Jordan, PhD, and Vicki Wilkins, MD all about females with Fragile X syndrome.
Free
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Greater Chicago Tree Decorating
Brookfield Zoo 3300 Golf Rd, Brookfield, IL, United StatesThe NFXF Greater Chicago Chapter has sponsored a tree for the 43rd annual Holiday Magic at Brookfield Zoo. Join them and other families as they decorate a tree to promote Fragile X awareness.
Free
Virtual Education – Holy Hormones! Let’s Talk About Puberty
ZoomThe Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the team of developmental-behavioral pediatricians for an upcoming virtual discussion on puberty in children with developmental diagnoses.
Free
NFXF Webinar Series: Navigating Challenging Behaviors 2024
Virtual LocationJoin us as we host a panel discussion with Tracy Stackhouse, MA, OTR/L, Lauren Moskowitz, PhD, Jennifer Epstein, PsyD, and Missy Zolecki all about navigating challenging behaviors.
Virtual – SSAN Friendsgiving Celebration
Join the Sibling and Self-Advocate Network (SSAN) virtually, for a Friendsgiving Celebration! They are grateful for each of you! They will play a game and create a Turkey-themed Charcutterrie board designed by Raddish© that you [...]
Virtual – Fragile X Dad’s Chat
Join the NFXF Connecticut Chapter for a Virtual Fragile X Dad's Chat – All Dads Welcome! Feel free to join the chat whenever works for you and stay for as long as you'd like! [...]
Free
NFXF Webinar Series: Gene Therapy & the FXS Community: A Review of Community Surveys
Virtual Location
Virtual Event
Join us as we hear from Anna De Sonia, Sarah Eley, Dr. Rey Lozano, Vivian Chen, and Dr. David Hampson as they discuss the preliminary results from their community surveys on gene therapy.
Free
Virtual – SSAN Strategic Planning Meeting
Join the Sibling and Self-Advocate Network (SSAN) and members of the NFXF Team to discuss ideas and topics that would be meaningful and helpful for Siblings and Self-Advocates in the coming two [...]
NFXF Webinar Series: 2025 NIH Fragile X Centers of Excellence Update
Virtual Event
Join us as we host Drs. Emily Allen, Craig Erickson, Peng Jin, David Nelson, and Peter Todd, in addition to NIH representative Dr. Kathleen Huntzkicker, for a discussion on research in Fragile X.
Featured
NFXF Advocacy Day 2025
Hilton Arlington Towers 950 N Stafford St., Arlington, United StatesJoin us for the NFXF Advocacy Day 2025. This annual in-person event will bring together families, self-advocates, siblings, caregivers, doctors, and researcher who are a collective voice dedicated to elevating awareness, educating, and showcasing actionable ways to support the Fragile X community.
9th Annual Hadley Corn Hole Championship
Hadley American Legion Post 271 162 Russell Street, Hadley, MAJoin the NFXF Western Mass Chapter for the 9th Annual Hadley Cornhole Championship fun-filled Corn Hole Competition! Teams of two will compete in a double-elimination tournament for a chance to win prizes and claim [...]
$40