Join us as we hear from Anna De Sonia, Sarah Eley, Dr. Rey Lozano, Vivian Chen, and Dr. David Hampson as they discuss the preliminary results from their community surveys on gene therapy.
Join the Sibling and Self-Advocate Network (SSAN) and members of the NFXF Team to discuss ideas and topics that would be meaningful and helpful for Siblings and Self-Advocates in the coming two [...]
Join us as we host Drs. Emily Allen, Craig Erickson, Peng Jin, David Nelson, and Peter Todd, in addition to NIH representative Dr. Kathleen Huntzkicker, for a discussion on research in Fragile X.
Join the Sibling and Self-Advocate Network (SSAN) for their next Zoom session as they dive into the power of advocacy. Our voices matter, and you can make a difference! They’ll kick off [...]
Join us for the NFXF Advocacy Day 2025. This annual in-person event will bring together families, self-advocates, siblings, caregivers, doctors, and researcher who are a collective voice dedicated to elevating awareness, educating, and showcasing actionable ways to support the Fragile X community.
Join the NFXF Connecticut Chapter for a Virtual Fragile X Dad's Chat – All Dads Welcome! Feel free to join the chat whenever works for you and stay for as long as you'd like! [...]
Join the Sibling and Self-Advocate Network (SSAN) and get ready for some fun at their March Madness Zoom! They’ll kick things off with some energizing music, play trivia, and catch up with [...]
Join the NFXF Western Mass Chapter for the 9th Annual Hadley Cornhole Championship fun-filled Corn Hole Competition! Teams of two will compete in a double-elimination tournament for a chance to win prizes and claim [...]
Join the NFXF on April 1, 2025 as they host a panel of genetic counselors who specialize in Fragile X in their webinar series. Susan Howell, Rena Pressman, Marisa Volvos, and trainee Kate Shelley will address the intricacies of the genetics of Fragile X.
