Virtual – SSAN March Madness
Join the Sibling and Self-Advocate Network (SSAN) and get ready for some fun at their March Madness Zoom! They’ll kick things off with some energizing music, play trivia, and catch up with [...]
12 events found.
9th Annual Hadley Corn Hole Championship
Hadley American Legion Post 271 162 Russell Street, Hadley, MAJoin the NFXF Western Mass Chapter for the 9th Annual Hadley Cornhole Championship fun-filled Corn Hole Competition! Teams of two will compete in a double-elimination tournament for a chance to win prizes and claim [...]
$40
2025 Monthly Webinar Series: Genetics of Fragile X
Virtual Event
Join the NFXF on April 1, 2025 as they host a panel of genetic counselors who specialize in Fragile X in their webinar series. Susan Howell, Rena Pressman, Marisa Volvos, and trainee Kate Shelley will address the intricacies of the genetics of Fragile X.
Rhode Island – Mom’s, Siblings, & Self-Advocates Night Out
Safehouse Modern Neighborhood Eatery 195 Old Forge Road, East Grenswich, RI, United StatesJoin caregivers, siblings, and self-advocates (ages 16 and up, male and female) from Rhode Island and the surrounding areas for a night out!
Virtual – Fragile X Dad’s Chat – May 7
Join the NFXF Connecticut Chapter for a Virtual Fragile X Dad's Chat – All Dads Welcome! Although our meetings are always open discussion with no particular topic, this month we will have 2 special [...]
Free
2025 Monthly Webinar Series: Top Financial Mistakes to Avoid for Dependents with Special Needs
Join the NFXF on May 13, 2025 as they host Kelly Piacenti of MassMutual SpecialCare and Jerry Hulick of The Washington Group Special Care Planning Team for a webinar and panel discussion on special needs financial planning.
For Professionals NFXF Webinar – Information on the PRMRP FY 25 Funding Opportunities
Please join us for an informational webinar for professionals about funding opportunities for the Peer Reviewed Medical Research Program (PRMRP). We will be joined by Kathryn J. Argue, Ph.D., Interim Program Manager, on May [...]
Bike To X Out Fragile X 2025
Ride With Us! Charity bicycle ride to benefit the National Fragile X Foundation, Heartland Chapter, which supports families affected by Fragile X Syndrome in Iowa and South Dakota. Event Details Date: Saturday, June 7, [...]
$30
2025 Monthly Webinar Series: FXPOI
The NFXF recently released an updated Fragile X-Associated Primary Ovarian Insufficiency Treatment Recommendation. Join the authors Heather Hipp, MD, Emily Allen, PhD, and Cecelia Bouska, LCGC, for a webinar, where they will discuss features and symptoms of FXPOI, risk prediction, and treatment strategies.
2025 Cincinnati Fragile X Family Conference
Please join us Saturday, July 12th at Cincinnati Children's Hospital for the 2025 Cincinnati Fragile X Family Conference! Top experts will be presenting on a broad range of topics. Topics include, but are not limited [...]
Donation
Fragile X Walk for Greater Chicago Families
Greater Chicago area X-Strides walk for Fragile X awareness taking place July 19 at 9:00 AM at Gallery Park.
Donation
2025 Monthly Webinar Series: Letter of Intent
Join the NFXF on August 5, 2025 as they host Kelly Piacenti of MassMutual SpecialCare and Jerry Hulick of The Washington Group Special Care Planning Team for a workshop on creating a letter of intent and how it supports special needs planning by guiding future caregivers with clear care instructions.