NFXF X Strides – 2024
Virtual LocationJoin us for X Strides 2024! Help raise awareness and funds to support Fragile X families by striding and sharing your story during Fragile X Awareness Month this July!
Join us for X Strides 2024! Help raise awareness and funds to support Fragile X families by striding and sharing your story during Fragile X Awareness Month this July!
The Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the social work team for an upcoming virtual discussion on the importance of becoming an effective advocate for your child!
Join the team from the Children's National Hospital Fragile X clinic for the "Belonging to FX" Family Meeting on July 20th!
Bring the whole family and join other families and friends from Rhode Island for their X Strides walk.
Join self-advocates, parents, caregivers, researchers, and state officials from South Carolina as they bring awareness to Fragile X-associated conditions.
Join us for the 19th NFXF International Fragile X Conference in Orlando, FL July 25 - 28, 2024! This biennial conference presents a unique opportunity for nearly 1,000 parents and professionals from around the world to gather and learn the latest about Fragile X.
Join the Sibling and Self-Advocate Network (SSAN) virtually, for a Pet Show & Tell! They invite everyone to share about their pets, favorite stuffed animals, or a photo of a favorite animal! If time permits [...]
The American Journal of Medical Genetics Part A recently congratulated Fragile X researchers for authoring - not one - but TWO of the journal's top 10 most-cited scientific papers. This is a great achievement and highlights the impact of Fragile X research within the community! Dr. Elizabeth Berry-Kravis and Dr. Walter Kaufmann will present on these two publications on Wednesday, August 14th from 1-1:45PM ET (New York), followed by a moderated Q&A.
The Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the social work team for an upcoming virtual discussion on the steps toward enhancing your child's executive functioning skills!
Join the NFXF Greater Chicago Chapter for a night out with other moms for a supportive and welcoming environment where you can connect with others who understand your unique journey.
The National Ataxia Foundation and the National Fragile X Foundation are excited to partner on a webinar series about FXTAS! Do you or a loved one have a Fragile X-associated tremor/ataxia syndrome (FXTAS)? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis.
Bring the whole family and roll into the fun zone in Fort Wayne, IN! The event will include food trucks, live music, performances, fire & police vehicles, face art, balloons, and cool cars galore! Everyone is welcome!
The National Ataxia Foundation and the National Fragile X Foundation are excited to partner on a webinar series about FXTAS! Do you or a loved one have a FXTAS? Dr. David Hessl will teach us how Fragile X-associated tremor/ataxia syndrome (FXTAS) is studied and give an overview of the current state of research and drug development for the disease.
Rob Snow, Director, CEO and Creator of The Improvaneer Method will create a positive learning atmosphere that incorporates fun, humor, and discipline into this interactive webinar. This class has been specially curated to consider self-advocates living with Fragile X.
Join the NFXF Western Massachusetts Chapter as they host the 2024 Cork and Cafe. Swirl, smell, and sip the evening away while supporting families living with Fragile X!