The National Ataxia Foundation and the National Fragile X Foundation are excited to partner on a webinar series about FXTAS! Do you or a loved one have a FXTAS? Dr. David Hessl will teach us how Fragile X-associated tremor/ataxia syndrome (FXTAS) is studied and give an overview of the current state of research and drug development for the disease.
Rob Snow, Director, CEO and Creator of The Improvaneer Method will create a positive learning atmosphere that incorporates fun, humor, and discipline into this interactive webinar. This class has been specially curated to consider self-advocates living with Fragile X.
Join the NFXF Western Massachusetts Chapter as they host the 2024 Cork and Cafe. Swirl, smell, and sip the evening away while supporting families living with Fragile X!
The Cincinnati Fragile X Research and Treatment Center presents the 3rd Annual Friend & Family Picnic. They will be having Special Neat Treat ice cream truck from 1-2 PM as well as other outdoor [...]
The Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the psychology team for an upcoming virtual discussion about helping caregivers prepare for the holiday season! The Fragile X [...]
Join us as we host a panel discussion with Barb Haas-Givler, MEd, BCBA, Cora Taylor, Nicole Tartaglia, MD, Tracy Jordan, PhD, and Vicki Wilkins, MD all about females with Fragile X syndrome.
The NFXF Greater Chicago Chapter has sponsored a tree for the 43rd annual Holiday Magic at Brookfield Zoo. Join them and other families as they decorate a tree to promote Fragile X awareness.
The Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the team of developmental-behavioral pediatricians for an upcoming virtual discussion on puberty in children with developmental diagnoses.
Join us as we host a panel discussion with Tracy Stackhouse, MA, OTR/L, Lauren Moskowitz, PhD, Jennifer Epstein, PsyD, and Missy Zolecki all about navigating challenging behaviors.
Join the Sibling and Self-Advocate Network (SSAN) virtually, for a Friendsgiving Celebration! They are grateful for each of you! They will play a game and create a Turkey-themed Charcutterrie board designed by Raddish© that you [...]
Join the NFXF Connecticut Chapter for a Virtual Fragile X Dad's Chat – All Dads Welcome! Feel free to join the chat whenever works for you and stay for as long as you'd like! [...]
Join us as we hear from Anna De Sonia, Sarah Eley, Dr. Rey Lozano, Vivian Chen, and Dr. David Hampson as they discuss the preliminary results from their community surveys on gene therapy.
Join the Sibling and Self-Advocate Network (SSAN) and members of the NFXF Team to discuss ideas and topics that would be meaningful and helpful for Siblings and Self-Advocates in the coming two [...]
Join us for the NFXF Advocacy Day 2025. This annual in-person event will bring together families, self-advocates, siblings, caregivers, doctors, and researcher who are a collective voice dedicated to elevating awareness, educating, and showcasing actionable ways to support the Fragile X community.
