Events for February 24, 2025 - August 5

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X-Strides with Greater Chicago

Gallery Park Glenview IL 2500 Chestnut Ave, Glenview, IL, United States +1 more

Bring the whole family and join the NFXF Greater Chicago chapter as they gather for their X Strides walk. Sign up for the NFXF X Strides and join the Greater Chicago team. Registration includes [...]

Virtual – SSAN You’ve Got a Friend in Me!

virtual

Join the Sibling and Self-Advocate Network (SSAN) as they talk about FRIENDSHIP! They invite everyone to share what qualities they think make a good friend and practice some activities to help make new friends! And [...]

Rhode Island – Fragile X Awareness Walk

Tollgate High School Track 575 Centerville Road, Warwick, RI, United States

Bring the whole family and join other families and friends from Rhode Island for their X Strides walk.

Free

2024 Fragile X Awareness – South Carolina State Capitol

South Carolina State Capitol 1100 Gervais St, Columbia, SC, United States

Join self-advocates, parents, caregivers, researchers, and state officials from South Carolina as they bring awareness to Fragile X-associated conditions.

Virtual – SSAN Pet Show and Tell

Join the Sibling and Self-Advocate Network (SSAN) virtually, for a Pet Show & Tell! They invite everyone to share about their pets, favorite stuffed animals, or a photo of a favorite animal! If time permits [...]

Lunch & Learn Series: “Mosaicism Type and Cognitive & Behavioral Functioning Among Males with FXS” and “Sleep Problems in FXS: Cross-Sectional Analysis of a Large Cohort”

Zoom

The American Journal of Medical Genetics Part A recently congratulated Fragile X researchers for authoring - not one - but TWO of the journal's top 10 most-cited scientific papers. This is a great achievement and highlights the impact of Fragile X research within the community! Dr. Elizabeth Berry-Kravis and Dr. Walter Kaufmann will present on these two publications on Wednesday, August 14th from 1-1:45PM ET (New York), followed by a moderated Q&A.

Free

Greater Chicago Mom’s Night Out

Pinstripes 1150 Willow Road, Northbrook, IL

Join the NFXF Greater Chicago Chapter for a night out with other moms for a supportive and welcoming environment where you can connect with others who understand your unique journey.

All About FXTAS

Zoom

The National Ataxia Foundation and the National Fragile X Foundation are excited to partner on a webinar series about FXTAS! Do you or a loved one have a Fragile X-associated tremor/ataxia syndrome (FXTAS)?  Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis.

Free

Xtreme Wheels for Fragile X Syndrome Fundraising Car Cruise In

Children's Autism Center 5601 Coventry Ln., Fort Wayne, IN, United States

Bring the whole family and roll into the fun zone in Fort Wayne, IN! The event will include food trucks, live music, performances, fire & police vehicles, face art, balloons, and cool cars galore! Everyone is welcome! 

Donation

Research and Treatment Development for FXTAS

Zoom

The National Ataxia Foundation and the National Fragile X Foundation are excited to partner on a webinar series about FXTAS! Do you or a loved one have a FXTAS? Dr. David Hessl will teach us how Fragile X-associated tremor/ataxia syndrome (FXTAS) is studied and give an overview of the current state of research and drug development for the disease.

Free