Virtual – SSAN Strategic Planning Meeting
Join the Sibling and Self-Advocate Network (SSAN) and members of the NFXF Team to discuss ideas and topics that would be meaningful and helpful for Siblings and Self-Advocates in the coming two [...]
10 events found.
NFXF Webinar Series: 2025 NIH Fragile X Centers of Excellence Update
Virtual Event
Join us as we host Drs. Emily Allen, Craig Erickson, Peng Jin, David Nelson, and Peter Todd, in addition to NIH representative Dr. Kathleen Huntzkicker, for a discussion on research in Fragile X.
Virtual – SSAN Keep Fragile X In Your Hearts this Legislative Session
Join the Sibling and Self-Advocate Network (SSAN) for their next Zoom session as they dive into the power of advocacy. Our voices matter, and you can make a difference! They’ll kick off [...]
Featured
NFXF Advocacy Day 2025
Hilton Arlington Towers 950 N Stafford St., Arlington, United StatesJoin us for the NFXF Advocacy Day 2025. This annual in-person event will bring together families, self-advocates, siblings, caregivers, doctors, and researcher who are a collective voice dedicated to elevating awareness, educating, and showcasing actionable ways to support the Fragile X community.
Virtual – Fragile X Dad’s Chat – February 26
Join the NFXF Connecticut Chapter for a Virtual Fragile X Dad's Chat – All Dads Welcome! Feel free to join the chat whenever works for you and stay for as long as you'd like! [...]
Free
Virtual – SSAN March Madness
Join the Sibling and Self-Advocate Network (SSAN) and get ready for some fun at their March Madness Zoom! They’ll kick things off with some energizing music, play trivia, and catch up with [...]
9th Annual Hadley Corn Hole Championship
Hadley American Legion Post 271 162 Russell Street, Hadley, MAJoin the NFXF Western Mass Chapter for the 9th Annual Hadley Cornhole Championship fun-filled Corn Hole Competition! Teams of two will compete in a double-elimination tournament for a chance to win prizes and claim [...]
$40
2025 Monthly Webinar Series: Genetics of Fragile X
Virtual Event
Join the NFXF on April 1, 2025 as they host a panel of genetic counselors who specialize in Fragile X in their webinar series. Susan Howell, Rena Pressman, Marisa Volvos, and trainee Kate Shelley will address the intricacies of the genetics of Fragile X.
2025 Monthly Webinar Series: Top Financial Mistakes to Avoid for Dependents with Special Needs
Join the NFXF on April 1, 2025 as they host a panel of genetic counselors who specialize in Fragile X in their webinar series. Susan Howell, Rena Pressman, Marisa Volvos, and trainee Kate Shelley will address the intricacies of the genetics of Fragile X.
Rhode Island – Mom’s, Siblings, & Self-Advocates Night Out
Safehouse Modern Neighborhood Eatery 195 Old Forge Road, East Grenswich, RI, United StatesJoin caregivers, siblings, and self-advocates (ages 16 and up, male and female) from Rhode Island and the surrounding areas for a night out!