Ride With Us! Charity bicycle ride to benefit the National Fragile X Foundation, Heartland Chapter, which supports families affected by Fragile X Syndrome in Iowa and South Dakota. Event Details Date: Saturday, June 7, [...]
The NFXF recently released an updated Fragile X-Associated Primary Ovarian Insufficiency Treatment Recommendation. Join the authors Heather Hipp, MD, Emily Allen, PhD, and Cecelia Bouska, LCGC, for a webinar, where they will discuss features and symptoms of FXPOI, risk prediction, and treatment strategies.
Please join us Saturday, July 12th at Cincinnati Children's Hospital for the 2025 Cincinnati Fragile X Family Conference! Top experts will be presenting on a broad range of topics. Topics include, but are not [...]
Join the NFXF on August 5, 2025 as they host Kelly Piacenti of MassMutual SpecialCare and Jerry Hulick of The Washington Group Special Care Planning Team for a workshop on creating a letter of intent and how it supports special needs planning by guiding future caregivers with clear care instructions.
