National Fragile X Awareness Month

July is National Fragile X Awareness Month! July 22 is officially recognized by Congress as Fragile X Awareness Day. We celebrate the entire month of July to raise more awareness and advocacy for Fragile X.

What is Fragile X?

Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe. To learn more about FXS and other Fragile disorders visit:

We Need Your Help to...

RAISE FUNDS to support individuals and families living with Fragile X.

How Can You Help?

Join a Let 'Em Know Team!

Join our teams on Crowdrise and create a fundraising page for Fragile X.

Challenge your friends and family!


Your donation will help us continue to make great strides both locally and nationally for individuals and families affected by Fragile X.

Join a Team!

Join your local CSN group or the national team to create a fundraising page. Help us spread the word about Fragile X and raise funds.

Share your Fundraising Page!

Let ‘Em Know by sharing a link to your fundraising page with your personal network of friends, family and co-workers through email and social media. Using the page, tell your Fragile X story and ask your friends to make a difference and donate in honor of your story and the Fragile X cause.

Ask Friends to Donate!

Ask your friends to make a difference and donate in honor of your very own Fragile X story.


Challenge yourself and your team by coming up with an idea! Hold an awareness and fundraising event. Walk for Fragile X! Have a garage sale! Auction a pie in your face! Shave your beard! Need ideas? Contact our Fundraising Events Manager for help at!

Want to do More?


Tell ‘em you’re with Fragile X by ordering our new shirt via our Crowdrise Page. Our newly designed T-shirts will help raise you raise awareness in July and beyond. This fantastic dri-fit shirt is available in NFXF’s bright, fun colors! Order yours on our Let Em Know site by June 20 in order to receive it by July 1.

*Please note: At this time, you cannot order multiple shirts on one page. To purchase another, complete your team setup and then go back to the main page and select Purchase a t-shirt a second time to get back to the order form.

Use our Let ‘Em Know logo as your profile pic!

LetEmKnowOn Facebook, Twitter or any social media account use the image below as your profile pic and add something like this as the caption (or copy and paste it!)

“July is National Fragile X Awareness Month, and I want to #LetEmKnow! Approximately 1 million Americans have the Fragile X mutation. Learn more at”

Download Profile Picture

Share our daily Fragile X Facts on social media.

Use our ‘Know Me’ Fragile X awareness cards for emergency situations. (Printable on Avery 8871)

Where Does Your Money Go?

To Help the National Fragile X Foundation

All funds raised support the National Fragile X Foundation’s mission to unite the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research towards improved treatments and a cure for Fragile X.

To Help Your Local Families

Fifty percent of all funds raised through this Let ‘Em Know campaign directly supports families in your local area through the NFXF Community Support Network (CSN)!

Local CSN groups support families locally through educational seminars and workshops, social and awareness events, and outreach and family resource support. Many also fund local scholarships for families to attend the biennial International Fragile X Conference which will be held this July 20-24, 2016 in San Antonio, TX.

The National Fragile X Foundation is a non-profit organization, tax ID# 84-0960471