Posted at April 20, 2017 | By: | Categories: Opportunities for families,Research

Research: UCD Language Intervention in Treatment for FXS

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of UC Davis MIND Institute. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the potential benefits of the study including those studies involving medications, and cannot be responsible for any outcomes, lack of outcomes or unintended side effects. Your name or other personal information have not been shared with the researchers/company/institution. If interested in participating in this research, it is your responsibility to use the contact information in this announcement. Additional opportunities for being part of research studies can be found at research.fragilex.org.
UC Davis MIND Institute

Now Recruiting Research Participants: Combining Lovastatin and a Parent-Implemented Language Intervention in a Multimodal Treatment for Fragile X syndrome

We invite you to take part in a research study to test the efficacy of a multimodal treatment comprised of the medication Lovastatin or placebo, and a Parent-Implemented Language Intervention (PILI) in children and adolescents with FXS.

Who Can Participate?

Children and adolescents between the ages of 10-17 diagnosed with Fragile X syndrome. Participants must be able to speak in at least two to three word phrases of English.

What Does the Study Involve?

  • Three visits to the MIND Institute over 20 weeks.
  • Behavioral and language assessments, medical history, a physical exam, parent questionnaires and blood and urine sampling.
  • Weekly video conferencing sessions in your home to learn strategies to help your child with language.
  • Child or adolescent will be randomized to either the medication Lovastatin or placebo.

What Else Can I Expect?

  • Families receive feedback from expert clinicians.
  • Travel reimbursement provided.
  • Results have the potential to positively influence current treatments for FXS.

Sign Up for Research

To learn more about the LOVA study, please contact:

Lauren Bullard
(916) 703-0491 or bullard@ucdavis.edu

Erika Bickel
(916) 703-0281 or esbickel@ucdavis.edu

Additional information

The UC Davis MIND Institute is a collaborative international research center committed to the awareness, understanding, prevention and care of neurodevelopmental disorders.

All studies take place at the MIND Institute, located at 2825 50th St. in Sacramento, CA 95817

For a map and directions, visit mindinstitute.ucdavis.edu.