Kennedy Krieger in MD Looking for Children 5-13 with Fragile X Syndrome

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Kennedy Krieger Institute. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to the potential benefits of the study including those studies involving medications, and cannot be responsible for any outcomes, lack of outcomes or unintended side effects. Your name or other personal information have not been shared with the researchers/company/institution. If interested in participating in this research, it is your responsibility to use the contact information in this announcement. Additional opportunities for being part of research studies can be found at

Got Fragile X?

Participate in a New Clinical Trial for Children with Fragile X Syndrome!

Kennedy Krieger Institute is looking for children, ages 5 through 13 years, with Fragile X syndrome to participate in a research study.


The purpose of this study is to determine if an investigational drug is a safe and effective treatment for symptoms associated with Fragile X syndrome.


Participation in this study will require up to 9 visits (each lasting 2-10 hours) to the Kennedy Krieger Institute in Baltimore, MD and up to 10 between-visit phone calls with the study doctor over an 18-week period.

Eligible participants may receive reimbursement for time and travel. The investigational drug and all study-related evaluations are provided at no cost to the participants.


Contact the Study Coordinator
(443) 923-7619 or

Michael Johnston MD, Principal Investigator
NA_00079628 (#)

Project sponsors: Hoffmann-La Roche Inc.
Approved Mar 27, 2013