- Fragile X-associated Disorders
- Treatment & Intervention
- Support the NFXF
On Fragile X Advocacy Day, nearly 200 FX advocates braved the “Snowstorm That Wasn’t” and asked their Members of Congress to sign letters to appropriators that were circulating from Senators Stabenow and Isakson and Representatives Harper and Engel. Here’s a copy of that signed Senate letter which has now been sent to the Appropriations Committee. If your Senators’ name doesn’t appear and you think it should have, give their office a call and politely inquire. Sometimes it’s an honest mistake, so don’t assume that you were promised something and they didn’t come through. That just means that next year you’ll have to do some additional follow-up to make sure things happen the way they’re supposed to. Great job everyone!