As part of the NFXF’s ever-increasing focus on services for adults, we are pleased to bring you this 30-minute slide and audio presentation by Dr. Marcia Braden, titled, “Moving from Pediatrics to Adult Care.”
This NFXF Webinar is geared toward professionals who are treating children with Fragile X syndrome and are considering transitioning their patient into adult care. Dr. Braden offers guidance based on her decades of experience working with the transition from childhood to adolescence to adulthood.
The difficulties associated with patients with Fragile X syndrome having to transition from their pediatric care provider to an adult provider has been the subject of discussion at the last two Fragile X Clinical & Research Consortium meetings and within the committee’s Executive Council. While we understand that is not the case at all FXCRC clinics, it is an issue at many, if not the majority, of the clinics. Therefore, we will continue to target the challenge with information we think you will find helpful.
We hope you can find the time in your busy schedules to give it a listen. You can access our webinars here.