Skip to content
Shop
Contact
DONATE
Understanding
Fragile X
Fragile X 101
Fragile X 101
Prevalence
Signs and Symptoms
Genetics and Inheritance
Testing and Diagnosis
Fragile X Syndrome
Fragile X Syndrome
Newly Diagnosed
Fragile X & Autism
Associated Conditions
Premutation
FXPOI
FXTAS
New Developments
Xtraordinary Individuals
31 Shareable Fragile X Facts
Fragile X Info Series
Fact sheets by topic
Fragile X MasterClass™️
Knowledge Center
Frequently asked questions.
Resources for
Families
Resources for Families
FXS Strategies by Topic
Adulthood
Autism
Behavior
COVID-19
Daily Living
Females
Medications
Physical & Medical Concerns
Puberty & Sexuality
School & Education
FXS Resources by Age
Premutation Topics
The Fragile X Premutation
FXTAS Resources
FXPOI Resources
Reproductive Resources
Newly Diagnosed
Research
Learn and participate
Research 101
What is research?
STX209 Reconsent Project
Enrollment is open
International Fragile X Premutation Registry
Enroll now
Participate in Research
MyFXResearch Portal
Original Research Articles
FORWARD-MARCH
Database and registry
Research Results
New and archives
Find a Fragile X Clinic
U.S. Fragile X Syndrome Clinics
FXTAS-Specific Clinics
International Clinics & Organizations
Find a Contact Near You
Knowledge Center
Our Fragile X library
Webinars & Videos
Printable Resources
Treatment Recommendations
Resources for
Professionals
Resources
for Professionals
NFXF MasterClass™️ for Professionals
Research Readiness Program
Research facilitation for researchers
NFXF Data Repository
International Fragile X Premutation Registry
FORWARD-MARCH
Registry & Database
NFXF-Led PFDD Meeting for Fragile X Syndrome
Patient-focused drug development
Marketing Your Research Opportunities
Treatment Recommendations
Fragile X Clinics
U.S. FXS Clinics
FXTAS-Specific Clinics
International Clinics & Organizations
NFXF RESEARCH AWARDS
Randi J. Hagerman Summer Scholar Research Awards
Junior Investigator Awards
Get
Involved
Donate
Give Monthly
Other Ways to Give
Meet Our Donors
_ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _
NFXF Merchandise
Advocate
Fragile X Awareness
X Strides
News &
Events
Blog
Subscribe
All Events
NFXF Conference
About
Us
Mission & Vision
Financials & Impact
Our Team
Our Board
Our Advisors
Our Sponsors
Search for:
Understanding Fragile X
Fragile X 101
Fragile X 101
Prevalence
Signs & Symptoms
Genetics and Inheritance
Testing and Diagnosis
Fragile X Syndrome
Fragile X Syndrome
Fragile X & Autism
Associated Conditions
Premutation
FXPOI
FXTAS
New Developments
Xtraordinary Individuals
31 Shareable Fragile X Facts
Fragile X Info Series
FRAGILE X MASTERCLASS
Knowledge Center
Resources for Families
Resources for Families
FXS Strategies by Topic
Adulthood
Autism
Behavior
Daily Living
Females
Medications
Physical & Medical Concerns
Fragile X and Puberty & Sexuality
School & Education
FXS Resources by Age
Premutation Topics
The Fragile X Premutation
FXTAS Resources
FXPOI Resources
Reproductive Resources
Newly Diagnosed
Research
Research 101: What is Research?
STX209 Reconsent Project
International Fragile X Premutation Registry
Participate in Research
Original Research Articles
FORWARD-MARCH
Research Results Roundup
Find a Clinic Near You
Find a Contact Near Your
Knowledge Center
Webinars & Videos
Printable Resources
Treatment Recommendations
Resources for Professionals
Resources for Professionals
NFXF MasterClass™️ for Professionals
Research Readiness Program
NFXF Data Repository
International Fragile X Premutation Registry
FORWARD-MARCH Registry & Database
NFXF-Led Patient-Focused Drug Development Meeting
Marketing Your Research Opportunities
Treatment Recommendations
Find a Clinic Near You
NFXF Research Awards
Randi J. Hagerman Summer Scholars
Junior Investigator Awards
Get Involved
Donate
Give Monthly
Other Ways to Give
Meet Our Donors
NFXF Merchandise
Advocate
Fragile X Awareness
X Strides
Participate in Research
News & Events
Blog
Subscribe
All Events
Fragile X Conference
About Us
Mission & Vision
Financials & Impact
Our Team
Our Board
Our Advisors
Our Sponsors
Contact Us
Shop
Post-Event Submissions
Home
/
Post-Event Submissions
Post-Event Submissions
NFXF
2019-03-01T10:54:02-05:00
Please complete the form below to submit your post-event
Thank you for sharing your event with us!
Group Name(s)
*
Boh Center for Child Development, Ochsner Health System
Boston Childrens Hospital
Central Alabama Fragile X
Central California Fragile X
Central Illinois Fragile X
Children’s Hospital of Orange County
Childrens Health and UT Southwestern Medical School
Childrens Hospital Colorado
Childrens Hospital of Pittsburgh of UPMC
Childrens National Fragile X Clinic
Cincinnati Fragile X Research and Treatment Center
Cleveland Clinic Foundation
Colorado Fragile X
Duke University Medical Center
Elwyn Fragile X Center
Emory University School of Medicine
Families for Fragile X
Fragile X Alliance of Ohio
Fragile X Alliance of Texas - Houston
Fragile X Alliance of Texas - San Antonio
Fragile X Association of Michigan
Fragile X Association of Southern California
Fragile X Association of Utah
Fragile X Center at Atlantic Health System
Fragile X Center at Atlantic Health System
Fragile X Central Pennsylvania
Fragile X Community Support of Wisconsin
Fragile X Families of Northern Virginia
Fragile X Families of Phoenix
Fragile X Families of Southeast Virginia
Fragile X Families of the Appalachians
Fragile X Northern California
Fragile X of Central Arkansas
Fragile X of Minnesota
Fragile X of Northern Arizona
Fragile X Resource Center of Missouri
Fragile X Resource Group of Greater New York City
Fragile X Society of Connecticut
Fragile X Southeast Pennsylvania
Fragile X Spectrum Disorder Clinic at Mount Sinai
Greater Atlanta Fragile X
Greater Chicago Fragile X
Greater Portland Fragile X Community Support
Greenwood Genetic Center Fragile X Clinic
Group Name Clean
Gulf Coast Region Fragile X Support Group
Heartland Fragile X Alliance
Kansas Fragile X Group
Kennedy Krieger Institute
Louisiana Fragile X Association
Mailman Center for Child Development
Maryland Fragile X Resource Group
MemorialCare Miller Children's & Women's Hospital Long Beach
MetroHealth Medical Center
Nebraska Fragile X Families Resource and Support Group
New Jersey Fragile X Community Support Group
New York State Institute for Basic Research in Developmental Disabilities
North Carolina Fragile X Foundation
North Idaho Eastern Washington Fragile X
North San Diego
Northern Vermont Fragile X Community Support
Norton Children's Developmental Center and Norton Children's Genetics Center
NYS Institute for Basic Research in Developmental Disabilities
Phoenix Childrens Hospital
Rush University Medical Center
Rutgers Robert Wood Johnson Medical School, Child Health Institute of New Jersey
Sibling and Self-Advocate Community Support Network
South Carolina Fragile X Resource Group
Stanford University
Texas Childrens Hospital
Texas Fragile X Association
Tri-State Fragile X Alliance
UC Davis Health System
University of Iowa Stead Family Children’s Hospital
University of Kansas Medical Center
University of Massachusetts Medical School University of Massachusetts Memorial Health Care
University of Michigan Hospital
University of Minnesota
Washington University
Western Massachusetts Fragile X
CTLR and click on Windows or Command and click on Mac to select multiple groups.
Event Title
*
Event Date
*
City
*
State
*
AK
AL
AR
AZ
CA
CO
CT
DC
DE
FL
GA
HI
IA
ID
IL
IN
KS
KY
LA
MA
MD
ME
MI
MN
MO
MS
MT
NC
ND
NE
NH
NJ
NM
NV
NY
OH
OK
OR
PA
RI
SC
SD
TN
TX
UT
VA
VT
WA
WI
WV
WY
Zip Code
*
Event Summary
*
The more specific the better: What was the weather like? What were the decorations? Did anything funny happen? What food was served? What was the atmosphere like? Give us quotes (with attribution and context).
Your Impact
Special recognition of anyone or information that you would like for us to try to include.
Attendee Makeup
*
Family/Caregivers
Professionals
General Community
Please let us know which groups were represented at your event.
Estimated Attendance
*
Please provide us with an approximate number if the actual is unknown.
Pictures
[expand trigclass="ew-expand" title="Picture Submission Guidelines"]
The most critical point and the chief determinant of whether your photo will be suitable for publication in printed material:
Please set your camera on the largest image size and the highest quality resolution it will allow. Different cameras have different terms, but the setting will usually be noted as “High,” “Super Fine,” “Ultra-High” or a similar term. Consult your manual or a knowledgeable friend or relative if you can’t find where you manage this setting.
Your final image should ideally be at “300 dpi” (dots per inch), which will make for a sharp (rather than blurry and faded-looking) image. To find dots per inch, click on the photo on your computer’s pull-down menu for something like “Inspector,” “Get Info” or “Document Properties.” DPI, along with image size and file size, should be noted there.
Please note: the dpi cannot simply be typed in and changed (for instance, from 72 to 300 dpi) in your photo editing software; the image must be shot at a high dpi.
Most photos of adequate dimensions and resolution for print reproduction will be in a range from 500K to 2MBs on your file. If it’s under 100K, there’s little chance the photo will hold up for print media (though it may well be fine for the NFXF website; electronic media requires much lower resolution than does print).
Unless you are very adept, do not crop, resize or try to edit your image in any way. We would much prefer to worry about that.
Try to save your image in JPEG or PNG formats. Do not use heavy JPEG compression.
[/expand]
Pictures
*
Drop a file here or click to upload
Choose File
Maximum file size: 104.86MB
Pictures help those who could not attend share in the event and excitement. Please attach several pictures. CTLR and click on Windows or Command and click on Mac to select multiple pictures.
If you are human, leave this field blank.