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Understanding Fragile X
Fragile X 101
Fragile X Syndrome
Fragile X & Autism
Premutation Carriers
FXTAS
FXPOI
Other Premutation Conditions
Xtraordinary Individuals
Living With Fragile X
❤️ COVID-19
Newly Diagnosed
Treatment and Intervention
Life Strategies
Community Support
Fragile X Clinics
Treatment Recommendations
Adults with Fragile X Syndrome eBook
Our Research
Our Research
NFXF Research Projects
FORWARD Registry & Database
NFXF Data Repository
NFXF-Led Patient-Focused Drug Development Meeting
International Fragile X Premutation Registry
Research Results Roundup
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Research 101: What is Research?
Participate in Research
NFXF Research Readiness Program
Fragile X Clinics
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Post-Event Submissions
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Post-Event Submissions
Post-Event Submissions
NFXF
2019-03-01T10:54:02-05:00
Please complete the form below to submit your post-event
Thank you for sharing your event with us!
Group Name(s)
*
Boh Center for Child Development, Ochsner Health System
Boston Childrens Hospital
Center of Excellence for Fragile X Treatment and Research
Central Alabama Fragile X
Central California Fragile X
Central Illinois Fragile X
Childrens Health and UT Southwestern Medical School
Childrens Hospital Colorado
Childrens Hospital of Pittsburgh of UPMC
Childrens National Fragile X Clinic
Cleveland Clinic Foundation
Colorado Fragile X
Duke University Medical Center
Elwyn Fragile X Center
Emory University School of Medicine
Families for Fragile X
Fragile X Alliance of Ohio
Fragile X Alliance of Texas - Houston
Fragile X Alliance of Texas - San Antonio
Fragile X Association of Michigan
Fragile X Association of Southern California
Fragile X Association of Utah
Fragile X Association of Washington State
Fragile X Center at Atlantic Health System
Fragile X Center at Atlantic Health System
Fragile X Central Pennsylvania
Fragile X Community Support of Wisconsin
Fragile X Families of Northern Virginia
Fragile X Families of Phoenix
Fragile X Families of Southeast Virginia
Fragile X Families of the Appalachians
Fragile X Northern California
Fragile X of Central Arkansas
Fragile X of Minnesota
Fragile X of Northern Arizona
Fragile X Resource Center of Missouri
Fragile X Resource Group of Greater New York City
Fragile X Society of Connecticut
Fragile X Southeast Pennsylvania
Geisinger Fragile X Center
Greater Atlanta Fragile X
Greater Chicago Fragile X
Greater Portland Fragile X Community Support
Greenwood Genetic Center Fragile X Clinic
Gulf Coast Region Fragile X Support Group
Heartland Fragile X Alliance
Kansas Fragile X Group
Kennedy Krieger Institute
Long Beach Memorial Miller Childrens and Womens Hospital Long Beach
Louisiana Fragile X Association
Mailman Center for Child Development
Maryland Fragile X Resource Group
MetroHealth Medical Center
Nebraska Fragile X Families Resource and Support Group
New Jersey Fragile X Community Support Group
New York State Institute for Basic Research in Developmental Disabilities
North Carolina Fragile X Foundation
Northern Vermont Fragile X Community Support
North Idaho Eastern Washington Fragile X
North San Diego
Rush University Medical Center
Seaver Autism Center for Research and Treatment at Mount Sinai
Sibling and Self-Advocate Community Support Network
South Carolina Fragile X Resource Group
Stanford University
Texas Childrens Hospital
Texas Fragile X Association
Tri-State Fragile X Alliance
UC Davis Health System
University of Iowa Stead Family Children’s Hospital
University of Kansas Medical Center
University of Massachusetts Medical School University of Massachusetts Memorial Health Care
University of Michigan Hospital
University of Minnesota
Vanderbilt University Medical Center
Waisman Center/UW Health
Washington University
Weisskopf Evaluation Center
Western Massachusetts Fragile X
CTLR and click on Windows or Command and click on Mac to select multiple groups.
CSN Region
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Event Title
*
Event Date
*
City
*
State
*
AK
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AR
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CO
CT
DC
DE
FL
GA
HI
IA
ID
IL
IN
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KY
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ME
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MS
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NV
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OK
OR
PA
RI
SC
SD
TN
TX
UT
VA
VT
WA
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WV
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Zip Code
*
Event Summary
*
The more specific the better: What was the weather like? What were the decorations? Did anything funny happen? What food was served? What was the atmosphere like? Give us quotes (with attribution and context).
Your Impact
Special recognition of anyone or information that you would like for us to try to include.
Attendee Makeup
*
Family/Caregivers
Professionals
General Community
Please let us know which groups were represented at your event.
Estimated Attendance
*
Please provide us with an approximate number if the actual is unknown.
Pictures
[expand trigclass="ew-expand" title="Picture Submission Guidelines"]
The most critical point and the chief determinant of whether your photo will be suitable for publication in printed material:
Please set your camera on the largest image size and the highest quality resolution it will allow. Different cameras have different terms, but the setting will usually be noted as “High,” “Super Fine,” “Ultra-High” or a similar term. Consult your manual or a knowledgeable friend or relative if you can’t find where you manage this setting.
Your final image should ideally be at “300 dpi” (dots per inch), which will make for a sharp (rather than blurry and faded-looking) image. To find dots per inch, click on the photo on your computer’s pull-down menu for something like “Inspector,” “Get Info” or “Document Properties.” DPI, along with image size and file size, should be noted there.
Please note: the dpi cannot simply be typed in and changed (for instance, from 72 to 300 dpi) in your photo editing software; the image must be shot at a high dpi.
Most photos of adequate dimensions and resolution for print reproduction will be in a range from 500K to 2MBs on your file. If it’s under 100K, there’s little chance the photo will hold up for print media (though it may well be fine for the NFXF website; electronic media requires much lower resolution than does print).
Unless you are very adept, do not crop, resize or try to edit your image in any way. We would much prefer to worry about that.
Try to save your image in JPEG or PNG formats. Do not use heavy JPEG compression.
[/expand]
Pictures
*
Drop a file here or click to upload
Choose File
Maximum upload size: 104.86MB
Pictures help those who could not attend share in the event and excitement. Please attach several pictures. CTLR and click on Windows or Command and click on Mac to select multiple pictures.
If you are human, leave this field blank.