My husband and I are the proud parents to our blended family of five kids. We were introduced to Fragile X in February 2011 after our son was diagnosed at two years old. We are fortunate to work with Dr. Craig Erickson at the Cincinnati FX clinic and have participated in several research studies.
I have worked in corporate wellness as an exercise physiologist and wellness coach for the past 22 years at a large hospital system, on-site worksite wellness programs, and in private practice. I’m driven by the desire to ensure that the NFXF continues to play an integral role in the lives of families, educate our communities, and facilitate research. I have been a member of the NFXF Board of Directors since 2015 and am currently serving as president.
I am the proud father of a 23-year-old son, Tyler, who was diagnosed with fragile X syndrome at the age of three. He has as kind a heart as anyone I know. I also have a 25-year-old, Sasha, now in college, whose life has been affected by Fragile X. I am honored to have joined the NFXF board and have worked tirelessly to help the NFXF raise awareness, provide support to those affected, and assist in finding treatments and a cure. It is a mission of love for me!
I live in Hadley, Mass., with my husband, Gerry, my son, Patrick, and my daughter, Kelley. We own a home-based business called Devine Overhead Doors. We raised our family in Hadley, and are active in our community.
Our son has Fragile X syndrome and attends the day program at Riverside Industries. Our daughter is co-leader of the NFXF Sibling and Self Advocate Network. We have run the Western Massachusetts Chapter of the National Fragile X Foundation for over 20 years. One of our missions is to spread awareness.
I have attended and set up a resource table at the Autism Connections annual conference for the last 10 years. There I provide information to parents about Fragile X and advise them to seek testing if they think it sounds like their child, I also provide information to professionals to pass on to the families they work with.
In my spare time I enjoy kayaking, hiking, biking, yoga, and walking, mostly with friends. I also volunteer for non-profit groups in our town, particularly those involved with developmental disabilities.
My wife Jammie and I live in McCook Lake, South Dakota. I am the father of three boys, Andrew (28), Tyler (14), and Austin (10). I earned a bachelor’s degree in sociology with a concentration in criminal justice and religion from Northwestern College in Orange City, Iowa, and a master’s in management from American Public University. I became certified in leadership development through the University of Nebraska’s Heartland Center for Leadership Development in 1998, and became a member of the National Training Faculty of The Mandt System® in 2001, where I am currently the director of implementation and governance.
I am a co-author of “Supporting People with Complex Behaviors” and “Autism: Supports Through the Spectrum.” My middle son, Tyler, was diagnosed with fragile x syndrome in 2009. As a parent of a child affected by a developmental disability, as well as a professional in the field, I bring a unique blend of personal and professional insights into my presentations.
I am a wife to Troy, and the mom of two amazing children, Eve (age 13) and Daniel (age 9). My son, Daniel, has the full mutation and was diagnosed with Fragile X syndrome at age two. I am proud to be an advocate for Fragile X and for my son. I will always be Daniel’s #1 fan and will never stop believing in him! I enjoy spending time with my family and friends and love traveling and spending time in nature.
I am the proud parent of three children, including Miles, a six-year-old living with Fragile X syndrome. I work in public health to promote health equity. When not working or caring for Miles, I volunteer to support the National Fragile X Foundation and the Special Olympics. In Fall 2020, I created the Xtraordinary Miles Campaign and ran a marathon completely barefoot to raise awareness of Fragile X syndrome. To entertain ourselves during the pandemic, Miles and I enjoy playing musical instruments, singing show tunes as loudly as possible, and hiking nearby Raven Rock State Park.
My name is Caroline Bridges. I am 17 years old and have Fragile X syndrome. I live in Houston and attend Kingwood High School. I am involved in Girl Scouts and am working on my Gold Award. I have also enjoyed learning how to drive a car through the SafeWay program. I enjoy working out at Orange Theory, collecting dolls, and traveling.
I am an occupational therapist and Will and I are the proud parents of Caroline (full mutation) and Clark. I have worked as an OT since 1999 and currently work in the Humble Independent School District near Houston. Not long after Caroline was diagnosed with Fragile X syndrome, Will and I began serving Fragile X families in the Houston area by forming an NFXF Community Support Group in 2011. I have attended five NFXF International Fragile X Conferences and was co-chair of the host committee for the 2016 conference in San Antonio.
Since the beginning of this Fragile X journey, we have been thankful for the National Fragile X Foundation and how it supports families, promotes education and awareness, and puts a priority on research. We keep moving forward and taking the next step. We are thankful for our Fragile X family because we are not alone!