NFXF Western Massachusetts Chapter
Northeast Region

Hadley, Massachusetts
413-584-1859

Leadership

Denise-Devine

Denise Devine

About Our Group

The Western Mass Fragile X group started in 1997 as a parent support group and has evolved through many changes at the NFXF. My husband Gerry and I formed this parent support group because we only had support from other parents that were over 2 hours away; with our young family it was difficult to spend a whole day away from our children. We support our families with a picnic early summer for all and a Wine Tasting Fundraiser for parents to enjoy. We share information about conferences, information sent by the NFXF and other local supports for families with children with disabilities. We participate in National Fragile X Advocacy Day yearly, research studies in many capacities and our daughter, Kelley, is a leader in the Sibling and Self-Advocate Community Support Group.

Recent Happenings

8th Annual Cork and Café Fundraiser Recap

The NFXF Western Massachusetts Chapter’s eighth annual Cork and Café Fundraiser hosted 55 wine lovers for an evening of wine tasting, appetizers, a silent auction, and for the non-wine drinkers, hand-roasted coffees.
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Fragile X Conference at Boston Children’s Educates Families

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Western Mass Holds Their 7th Annual Cork and Cafe Fundraiser!

Fifty-two friends and family joined us for an amazing 7th annual Cork and Cafe fundraiser! We were able to have the patio curtains open to give a feel of being outside with seven pouring stations
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Western Mass Speaks to Medical Students

Denise Devine of Western Massachusetts Fragile X spoke to first year medical students about iliving with a family member with Fragile X. She showed pictures of Patrick through the years and other families in the Western
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Moms Night Out: Burgers with Buddies!

May 11, 2017 – Moms of children with Fragile X met at the Artisanal Burger Company to spend time with friends while enjoying delicious handcrafted burgers made with fresh, local ingredients. The moms, Madelene, Orna,
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Western Massachusetts Hosts Rollerskating Event

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Local Tournament Raises over $1,100 for NFXF

What happens when you combine friendly competition and a campaign to raise awareness of Fragile X? Tremendous success! Western Massachusetts participated in the 2nd annual Hadley Cornhole Championship, raising awareness and over $1,100 for NFXF!
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Moms' Night out with Connecticut and Western MA

It's always fun with moms get together and share stories and good times!
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Western Mass Fragile X Wine Tasting Fundraiser

On October 2nd, Western Massachusetts Fragile X partnered with Four Season's and Esselon Cafe to hose a wine tasting event, benefitting Fragile X.
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Principles of Human Genetics, Clinical & Ethical Correlation: Fragile X

On September 12, 2016, Western Massachusetts Fragile X hosted an educational event in collaboration with Dr. Joel Richter of Mass Medical School. Approximately 140 first-year medical students attended this event that highlighted Dr. Richter's research into Fragile X syndrome.
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Western Massachusetts Fragile X Participates in Local Camp

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Fragile X Moms in Massachusetts and Connecticut Enjoy Time Together

Fragile X moms in western Massachusetts enjoyed a night of fun, food and fellowship!
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Proclaiming Fragile X Awareness Day At Home Plate in Fenway Park

Tuesday, April 23 was a proud day for Fragile X. That’s when Denise Devine of the Fragile X Resource Center of Western Massachusetts and my husband, Eric Welin, of the Fragile X LINKS Group of Eastern Massachusetts, stepped onto the field at Fenway Park in Boston, accompanied by our son, Caleb. They stood together behind home plate
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Upcoming Events

We are looking for volunteers to help organize events, if you are interested in joining our group and assisting with events, please contact us at westernma@fragilex.org