FRAXSOCAL 5K for Fragile X
Bonelli Park 120 Vía Verde, San Dimas, United StatesThe Fragile X Association of Southern California (FRAXSOCAL) is hosting their 11th Annual 5K for Fragile X and Family Fun Day event on Saturday, March 16, 2024.
$25
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NFXF Webinar for Professionals – Peer Reviewed Medical Research Program (PRMRP) FY24 Funding Opportunities
Virtual LocationJoin us for an informational webinar about funding opportunities for FY24 on April 10th at 12pm ET with the Program Manager for the Peer Reviewed Medical Research Program (PRMRP).
Meet and Greet with the NFXF Kansas Chapter and KU Research Team
Chicken N Pickle 5901 W 135th Street, Overland Park, KS, United StatesJoin the NFXF Kansas Chapter for a meet and greet with healthcare providers and researchers from the University of Kansas.
Virtual Education – Empowering Conversations: Talking to Your Child About Their Diagnosis
ZoomThe Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the psychology team for an upcoming virtual discussion on how to talk to your child about their diagnosis.
Free
Virtual – SSAN Critics Choice Awards
ZoomJoin the Sibling and Self-Advocate Network (SSAN) as they host their virtual Critics Choice Awards.
Greater Chicago – Fragile X Family Get Together at Lincoln Park Zoo
Lincoln Park zoo 2400 N. Cannon Drive, Chicago, ILJoin the NFXF Greater Chicago Chapter for a Sensory-Friendly morning at Lincoln Park Zoo.
Free
NFXF Webinar Series – 10 Basic Financial Steps for Special Needs Caregivers
Virtual LocationJoin us for the NFXF Webinar Series - 10 Basic Financial Steps for Special Needs Caregivers with Kelly Piacenti to help caregivers get started in preparing for the financial future of their loved one with Fragile X.
Lunch & Learn Series: FMR1 Carriers Report Executive Function Changes Prior to Fragile X-Associated Tremor/Ataxia Syndrome: A Longitudinal Study
ZoomPlease join us and our guest, David Hessl, PhD, at the next webinar in our Lunch & Learn Series on May 9, 2024, at 3 PM ET/ 12 PM PT.
Free
NFXF Webinar Series – Financially Empowering the Fragile X Community Through ABLE Accounts
Virtual LocationJoin us for the NFXF Webinar Series - Financially Empowering the Fragile X Community Through ABLE Accounts with Eric Ochmanek & John Finch as they provide a comprehensive overview of ABLE Accounts.
Virtual Education – The Other Kid: Supporting Siblings of Children with Disabilities
ZoomThe Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the social work team for an upcoming virtual discussion with caregivers about supporting siblings of children with developmental diagnoses.
Free
9th Annual Bike to X Out – Des Moines, IA
GoodSons Food & Spirits 2815 Beaver Ave, Des Moines, United StatesJoin the NFXF Heartland - Iowa & South Dakota as they host the 9th Bike to X Out Charity Bike Ride.
$30