Events for December 16 - September 29

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Lunch & Learn Series: “Mosaicism Type and Cognitive & Behavioral Functioning Among Males with FXS” and “Sleep Problems in FXS: Cross-Sectional Analysis of a Large Cohort”

Zoom

The American Journal of Medical Genetics Part A recently congratulated Fragile X researchers for authoring - not one - but TWO of the journal's top 10 most-cited scientific papers. This is a great achievement and highlights the impact of Fragile X research within the community! Dr. Elizabeth Berry-Kravis and Dr. Walter Kaufmann will present on these two publications on Wednesday, August 14th from 1-1:45PM ET (New York), followed by a moderated Q&A.

Free

Greater Chicago Mom’s Night Out

Pinstripes 1150 Willow Road, Northbrook, IL

Join the NFXF Greater Chicago Chapter for a night out with other moms for a supportive and welcoming environment where you can connect with others who understand your unique journey.

All About FXTAS

Zoom

The National Ataxia Foundation and the National Fragile X Foundation are excited to partner on a webinar series about FXTAS! Do you or a loved one have a Fragile X-associated tremor/ataxia syndrome (FXTAS)?  Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis.

Free

Xtreme Wheels for Fragile X Syndrome Fundraising Car Cruise In

Children's Autism Center 5601 Coventry Ln., Fort Wayne, IN, United States

Bring the whole family and roll into the fun zone in Fort Wayne, IN! The event will include food trucks, live music, performances, fire & police vehicles, face art, balloons, and cool cars galore! Everyone is welcome! 

Donation

Research and Treatment Development for FXTAS

Zoom

The National Ataxia Foundation and the National Fragile X Foundation are excited to partner on a webinar series about FXTAS! Do you or a loved one have a FXTAS? Dr. David Hessl will teach us how Fragile X-associated tremor/ataxia syndrome (FXTAS) is studied and give an overview of the current state of research and drug development for the disease.

Free

Improvaneer Zoom Class for Fragile X!

Zoom

Rob Snow, Director, CEO and Creator of The Improvaneer Method will create a positive learning atmosphere that incorporates fun, humor, and discipline into this interactive webinar. This class has been specially curated to consider self-advocates living with Fragile X.

Free

NFXF Western Massachusetts – Cork and Cafe 2024

Esselon Cafe 99 Russell Street, Hadley, MA, United States

Join the NFXF Western Massachusetts Chapter as they host the 2024 Cork and Cafe.  Swirl, smell, and sip the evening away while supporting families living with Fragile X!

$35

3rd Annual Friend & Family Picnic – Cincinnati

Weston Shelter at Woodland Mound (8250 Old Kellogg Road, Cincinnati, OH 45255) 8250 Old Kellogg Road, Cincinnati, OH, United States

The Cincinnati Fragile X Research and Treatment Center presents the 3rd Annual Friend & Family Picnic. They will be having Special Neat Treat ice cream truck from 1-2 PM as well as other outdoor [...]

NFXF Webinar Series- 2024 Females with FXS

Zoom

Join us as we host a panel discussion with Barb Haas-Givler, MEd, BCBA, Cora Taylor, Nicole Tartaglia, MD, Tracy Jordan, PhD, and Vicki Wilkins, MD all about females with Fragile X syndrome.

Free

Greater Chicago Tree Decorating

Brookfield Zoo 3300 Golf Rd, Brookfield, IL, United States

The NFXF Greater Chicago Chapter has sponsored a tree for the 43rd annual Holiday Magic at Brookfield Zoo. Join them and other families as they decorate a tree to promote Fragile X awareness.

Free

Virtual Education – Holy Hormones! Let’s Talk About Puberty

Zoom

The Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the team of developmental-behavioral pediatricians for an upcoming virtual discussion on puberty in children with developmental diagnoses.

Free

Virtual – SSAN Friendsgiving Celebration

Join the Sibling and Self-Advocate Network (SSAN) virtually, for a Friendsgiving Celebration! They are grateful for each of you! They will play a game and create a Turkey-themed Charcutterrie board designed by Raddish© that you [...]

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