Featured
NFXF X Strides – 2024
Virtual LocationJoin us for X Strides 2024! Help raise awareness and funds to support Fragile X families by striding and sharing your story during Fragile X Awareness Month this July!
$40 – $50
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Virtual – SSAN Pet Show and Tell
Join the Sibling and Self-Advocate Network (SSAN) virtually, for a Pet Show & Tell! They invite everyone to share about their pets, favorite stuffed animals, or a photo of a favorite animal! If time permits [...]
Lunch & Learn Series: “Mosaicism Type and Cognitive & Behavioral Functioning Among Males with FXS” and “Sleep Problems in FXS: Cross-Sectional Analysis of a Large Cohort”
ZoomThe American Journal of Medical Genetics Part A recently congratulated Fragile X researchers for authoring - not one - but TWO of the journal's top 10 most-cited scientific papers. This is a great achievement and highlights the impact of Fragile X research within the community! Dr. Elizabeth Berry-Kravis and Dr. Walter Kaufmann will present on these two publications on Wednesday, August 14th from 1-1:45PM ET (New York), followed by a moderated Q&A.
Free
Virtual Education – Steps Towards Success: Enhancing Executive Functioning and Organizational Skills in Children with Developmental Disabilities
ZoomThe Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the social work team for an upcoming virtual discussion on the steps toward enhancing your child's executive functioning skills!
Free
Greater Chicago Mom’s Night Out
Pinstripes 1150 Willow Road, Northbrook, ILJoin the NFXF Greater Chicago Chapter for a night out with other moms for a supportive and welcoming environment where you can connect with others who understand your unique journey.
All About FXTAS
ZoomThe National Ataxia Foundation and the National Fragile X Foundation are excited to partner on a webinar series about FXTAS! Do you or a loved one have a Fragile X-associated tremor/ataxia syndrome (FXTAS)? Join our webinar to learn about the mechanisms of the disease, the diagnostic journey, and what to expect for clinical care with this diagnosis.
Free
Xtreme Wheels for Fragile X Syndrome Fundraising Car Cruise In
Children's Autism Center 5601 Coventry Ln., Fort Wayne, IN, United StatesBring the whole family and roll into the fun zone in Fort Wayne, IN! The event will include food trucks, live music, performances, fire & police vehicles, face art, balloons, and cool cars galore! Everyone is welcome!
Donation
Research and Treatment Development for FXTAS
ZoomThe National Ataxia Foundation and the National Fragile X Foundation are excited to partner on a webinar series about FXTAS! Do you or a loved one have a FXTAS? Dr. David Hessl will teach us how Fragile X-associated tremor/ataxia syndrome (FXTAS) is studied and give an overview of the current state of research and drug development for the disease.
Free
Improvaneer Zoom Class for Fragile X!
ZoomRob Snow, Director, CEO and Creator of The Improvaneer Method will create a positive learning atmosphere that incorporates fun, humor, and discipline into this interactive webinar. This class has been specially curated to consider self-advocates living with Fragile X.
Free
NFXF Western Massachusetts – Cork and Cafe 2024
Esselon Cafe 99 Russell Street, Hadley, MA, United StatesJoin the NFXF Western Massachusetts Chapter as they host the 2024 Cork and Cafe. Swirl, smell, and sip the evening away while supporting families living with Fragile X!
$35
3rd Annual Friend & Family Picnic – Cincinnati
Weston Shelter at Woodland Mound (8250 Old Kellogg Road, Cincinnati, OH 45255) 8250 Old Kellogg Road, Cincinnati, OH, United StatesThe Cincinnati Fragile X Research and Treatment Center presents the 3rd Annual Friend & Family Picnic. They will be having Special Neat Treat ice cream truck from 1-2 PM as well as other outdoor [...]
Virtual Education – Navigating the Holiday Season: Strategies for Supporting Children with Developmental Disabilities
ZoomThe Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the psychology team for an upcoming virtual discussion about helping caregivers prepare for the holiday season! The Fragile X [...]
Free
NFXF Webinar Series- 2024 Females with FXS
ZoomJoin us as we host a panel discussion with Barb Haas-Givler, MEd, BCBA, Cora Taylor, Nicole Tartaglia, MD, Tracy Jordan, PhD, and Vicki Wilkins, MD all about females with Fragile X syndrome.
Free
Greater Chicago Tree Decorating
Brookfield Zoo 3300 Golf Rd, Brookfield, IL, United StatesThe NFXF Greater Chicago Chapter has sponsored a tree for the 43rd annual Holiday Magic at Brookfield Zoo. Join them and other families as they decorate a tree to promote Fragile X awareness.
Free