Featured
NFXF X Strides – 2024
Virtual LocationJoin us for X Strides 2024! Help raise awareness and funds to support Fragile X families by striding and sharing your story during Fragile X Awareness Month this July!
$40 – $50
Loading view.
X-Strides with Greater Chicago
Gallery Park Glenview IL 2500 Chestnut Ave, Glenview, IL, United States +1 moreBring the whole family and join the NFXF Greater Chicago chapter as they gather for their X Strides walk. Sign up for the NFXF X Strides and join the Greater Chicago team. Registration includes [...]
Virtual – SSAN You’ve Got a Friend in Me!
virtualJoin the Sibling and Self-Advocate Network (SSAN) as they talk about FRIENDSHIP! They invite everyone to share what qualities they think make a good friend and practice some activities to help make new friends! And [...]
Virtual Education – You Get More Bees with Honey: Becoming an Effective Advocate for Your Child
ZoomThe Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the social work team for an upcoming virtual discussion on the importance of becoming an effective advocate for your child!
Free
Children’s National Hospital – “Belonging to FX” Family Event
Children's National Hospital 111 Michigan Ave NW, Washington D.C., DC, United StatesJoin the team from the Children's National Hospital Fragile X clinic for the "Belonging to FX" Family Meeting on July 20th!
Free
Rhode Island – Fragile X Awareness Walk
Tollgate High School Track 575 Centerville Road, Warwick, RI, United StatesBring the whole family and join other families and friends from Rhode Island for their X Strides walk.
Free
2024 Fragile X Awareness – South Carolina State Capitol
South Carolina State Capitol 1100 Gervais St, Columbia, SC, United StatesJoin self-advocates, parents, caregivers, researchers, and state officials from South Carolina as they bring awareness to Fragile X-associated conditions.
Featured
19th NFXF International Fragile X Conference
Renaissance Orlando at SeaWorld 6677 Sea Harbor Dr., Orlando, FL, United StatesJoin us for the 19th NFXF International Fragile X Conference in Orlando, FL July 25 - 28, 2024! This biennial conference presents a unique opportunity for nearly 1,000 parents and professionals from around the world to gather and learn the latest about Fragile X.
Varies
Virtual – SSAN Pet Show and Tell
Join the Sibling and Self-Advocate Network (SSAN) virtually, for a Pet Show & Tell! They invite everyone to share about their pets, favorite stuffed animals, or a photo of a favorite animal! If time permits [...]
Lunch & Learn Series: “Mosaicism Type and Cognitive & Behavioral Functioning Among Males with FXS” and “Sleep Problems in FXS: Cross-Sectional Analysis of a Large Cohort”
ZoomThe American Journal of Medical Genetics Part A recently congratulated Fragile X researchers for authoring - not one - but TWO of the journal's top 10 most-cited scientific papers. This is a great achievement and highlights the impact of Fragile X research within the community! Dr. Elizabeth Berry-Kravis and Dr. Walter Kaufmann will present on these two publications on Wednesday, August 14th from 1-1:45PM ET (New York), followed by a moderated Q&A.
Free
Virtual Education – Steps Towards Success: Enhancing Executive Functioning and Organizational Skills in Children with Developmental Disabilities
ZoomThe Meyer Center for Developmental Pediatrics in The Texas Medical Center invites you to join the social work team for an upcoming virtual discussion on the steps toward enhancing your child's executive functioning skills!
Free
Greater Chicago Mom’s Night Out
Pinstripes 1150 Willow Road, Northbrook, ILJoin the NFXF Greater Chicago Chapter for a night out with other moms for a supportive and welcoming environment where you can connect with others who understand your unique journey.