Join the Sibling and Self-Advocate Network (SSAN) and members of the NFXF Team to discuss ideas and topics that would be meaningful and helpful for Siblings and Self-Advocates in the coming two years. This is an excellent opportunity to have your voice heard and share your thoughts on what would best support you and your family. Everyone is welcome to attend and join in the discussion. We’ll review responses from an online survey (available until early March). While completing the survey is encouraged, it is not mandatory to participate in the discussion. Registration is required.

Event Details:

• Date: January 25, 2025
• Location: Virtual
• Time: 2:00 PM ET/ 1:00 PM CT/ 12:00 PM MT/ 11:00 AM PT
• Take the Survey ↗
• Register ↗
• Visual Schedule: SSAN Strategic Planning Visual Schedule

Join the SSAN Facebook page or email sibselfrl@fragilex.org with any questions.