NFXF Advocacy Day 2025

We will be hosting our 21st NFXF Advocacy Day. This annual in-person event will take place in Washington D.C. Join families, self-advocates, siblings, caregivers, doctors, and researchers who are a collective voice dedicated to elevating awareness, educating, and showcasing actionable ways to support the Fragile X community.

By sharing your experiences, you spotlight the triumphs and challenges of the Fragile X community. Your personal stories are powerful tools for change. The NFXF provides training (both online and in-person), schedules meetings, and all the materials you’ll need, including resources to help you share your story! Advocating is the cornerstone of driving significant change and an incredibly empowering journey.

Event Details

• Date: February 24 – February 25, 2025
• Location: Washington, D.C.
• Registration: The link will be shared later this year.
• Agenda: Additional Details will be shared later this year.
• Questions: Contact the NFXF team at advocacy@fragilex.org