Loading Events

NFXF Advocacy Day

NFXF Advocacy Day Group Photo
  • March 5, 2018 - March 6, 2018

March 5-6, 2018
Save the Date.

On National Fragile X Foundation Advocacy Day, held every March, members of the Fragile X community descend on Capitol Hill to relate their stories about Fragile X-associated Disorders, their families and policies that support Fragile X families, such as health insurance, research at the NIH and DOD, research and public health programs at CDC, ABLE accounts for savings, facilitating the use of potential new drugs for treatments and a cure, and other items.

More info coming soon.

 

Details

Start:
March 5, 2018
End:
March 6, 2018
Event Category:
Event Tags:
, ,
Website:
https://fragilex.org/community/advocacy/

Organizer

National Fragile X Foundation
Email:
Website:
http://fragilex.org

Venue

Capitol Hill
Washington, DC United States
+ Google Map