Southwest Region

St. Louis, Missouri


Diane Southard

Diane Southard
Phone: 314-835-9673

About Our Group

Established in 1992, The Fragile X Resource Center of Missouri strives to unites the local community to enrich lives through educational and emotional support, promote public and professional awareness, and support research toward improved treatments and ultimately, cures for Fragile X. We believe that a diagnosis does not define a person, everyone is capable of eXtraordinary things!

Recent Happenings

Sibs Night Out in St. Louis

St. Louis siblings had a great May Day supporting each other and being crafty!
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St. Louis’ Annual Mouse Races

There is something to be said about unique thinking, especially when fundraising can be so challenging. Creating a signature event in your community takes time, patience and creativity. Thankfully, our group leaders have all of those qualities, including the Fragile X Resource Center of Missouri who just held their 8th Annual Mouse Races. Yes, you read that correctly: mouse races!
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A Full Fall Calendar for Fragile X Groups!

With children back in school, fall is a popular time for educational seminars and workshops. One of the many great things our LINKS groups do is to provide educational opportunities for families and professionals. Attending an educational event can make a huge difference in the school year. Check out the following list of upcoming educational seminars—and don’t forget there are plenty of fall social events and fundraisers coming up, too!
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Walking, Running, and Hiking for a Cause! And the 2012 Annual Report!

Focus on Fundraisers If you haven’t heard by now, we are hosting our first annual “Let ‘Em Know Virtual 5k Run/Walk for Fragile X” in honor of National Fragile X Awareness month in July! Thanks to the nearly 270 fundraisers who registered for this unique event! It’s not too late to join the fun—running or
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Upcoming Events

We are looking for volunteers to help organize events, if you are interested in joining our group and assisting with events, please contact us at stlouis@fragilex.org