Aaron’s story shows why early Fragile X awareness changes lives. Discover how NFXF is launching new caregiver support programs—and how your gift can help.
Meet Maya, whose journey shows what’s possible for females with Fragile X. Discover how NFXF and the LivJoy Foundation are expanding support, awareness, and opportunity.
Meet Jill and her family, whose multi-generational Fragile X story highlights the importance of research, testing, and hope. Learn how new FXTAS clinical trial readiness efforts are paving the way for future treatments.
Meet Will, who lives with Fragile X syndrome and participates in research studies. Learn how your gift on Giving Tuesday will help grow the future of Fragile X research.
Learn how you can help us educate more clinicians about the Fragile X premutation, with a special emphasis on raising awareness for FXPOI, in 2026.
Moshi Moshi is hosting their 6th annual fundraiser to support the NFXF during Fragile X Awareness Month in July.
Learn how we are equipping families with resources needed to plan for the future with confidence, while we continue to work towards treatments for Fragile X.
Executive Director Hilary Rosselot shares with us some of what we’ve been able to accomplish so far this year with the support of our donors. Thank you to each and every one of you. You are making an incredible difference for families living with Fragile X!
NFXF Greater Chicago Chapter hosted and organized two local events to bring together families living with Fragile X syndrome.
NFXF Western Massachusetts Chapter hosted and organized local events to unite the Fragile X community.
Organized and hosted by Andrea and Kevin Marner, the 3rd Annual Quad Cities Fragile X Golf Outing on June 25, 2022, at the Byron Hills Golf Course in Byron Hills, Illinois, was a huge success
If you’re looking for fundraising ideas, consider these suggestions from Joey Christoff, who recently hosted his fourth “Fishing for a Cure” fundraiser.