Kristin Bogart
Kristin joined the NFXF team in 2019. She has over 25 years of experience in fundraising and non-profit management, event planning, and board and volunteer development. She earned a bachelor’s degree in economics and a master’s in public administration. Kristin loves spending time with her two adult sons, playing tennis, and hiking in the Santa Cruz mountains on the California coast.
More from the Author
Shionogi provides updates on the EXPERIENCE adult and adolescent studies in Fragile X syndrome.
We ask the Fragile X community to share any specialists who have helped them with FXPOI and who might be interested in learning more about the consortium.
The clinic at the Masonic Institute for the Developing Brain offers personalized evaluation, consultation, treatment, and support for children and adults with Fragile X syndrome and related conditions.
Aaron’s story shows why early Fragile X awareness changes lives. Discover how NFXF is launching new caregiver support programs—and how your gift can help.
Meet Maya, whose journey shows what’s possible for females with Fragile X. Discover how NFXF and the LivJoy Foundation are expanding support, awareness, and opportunity.
Joey Christoff and his family host this multi-day fishing competition at their Hilton Head, South Carolina, home, turning a world-renowned vacation destination into a fundraising powerhouse.
Meet Jill and her family, whose multi-generational Fragile X story highlights the importance of research, testing, and hope. Learn how new FXTAS clinical trial readiness efforts are paving the way for future treatments.
Jay and Anne Souder have done it again with their annual golf event and fundraiser, “FORE! Fragile X,” and we have the pictures!
Learn how you can help us educate more clinicians about the Fragile X premutation, with a special emphasis on raising awareness for FXPOI, in 2026.
Meet Will, who lives with Fragile X syndrome and participates in research studies. Learn how your gift on Giving Tuesday will help grow the future of Fragile X research.
On Tuesday, July 22, the Rhode Island State House held a special lighting called Lighting the Way for Fragile X in honor of National Fragile X Awareness Day. And, of course, all of the Little Rhody Warriors were there!
Moshi Moshi is hosting their 6th annual fundraiser to support the NFXF during Fragile X Awareness Month in July.
Nancy Carlson and the NFXF Heartland Chapter — Iowa and South Dakota hosted their 10th Annual Bike To X Out Fragile X on Saturday, June 7, 2025, in Des Moines, Iowa.
Little Rhody Warriors families held their second annual “Fragile X Awareness Walk” on May 18 in Warwick, Rhode Island. More than 50 family members, caregivers, and friends participated in this X Strides event.
Rhode Island families gathered for a night out at a local restaurant on April 12th to share experiences and stories.
Most people first hear about Fragile X when someone in their family is unexpectedly diagnosed. We have two letters from two moms to share with you.
The Haugen’s third Fragile X Christmas Party was another smashing success. Their fundraising goal was $25,000, and they raised a whopping $36,420.
The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2024! Check out the big fish and the big smiles.
Learn how we are equipping families with resources needed to plan for the future with confidence, while we continue to work towards treatments for Fragile X.
One of our newest initiatives aims to intentionally extend our reach to underserved communities across the United States. In partnership with four Fragile X clinics, we’ve begun work to understand the challenges to diagnosis and treatment faced by Black, Hispanic and Native American communities and the providers who serve them.
Learn how we are expanding our network of Fragile X clinics to better support individuals living with the Fragile X premutation.
Highlighting the Fragile X Syndrome Multi-Disciplinary Clinic at the University of Michigan Health, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC).
More than 50 friends and supporters gathered on September 29 to eat great food, taste various wines, bid for prizes, and raise awareness and funds to support the Fragile X community.
Families for Fragile X held their first “Fragile X Walk” event on July 20 in Warwick, Rhode Island. More than 50 family members, caregivers, and the general public participated their first X Strides event.
During February 2024 Advocacy Day, Harmony team members had a chance to join our new colleagues alongside the Fragile X community and NFXF.
The Cincinnati Fragile X Research and Treatment Center provides clinical care for individuals with Fragile X syndrome and related conditions and disorders.
An interdisciplinary staff and faculty includes specialists in pediatrics, molecular genetics, psychiatry, psychology, neurology, neurobiology, pathology, and social work.
The Haugen’s second annual Fragile X Christmas party gathered nearly 100 guests for music, food, and drinks while learning more about Fragile X.
Pictures and more from Jay and Anne Souder’s 2023 annual golf event, “FORE! Fragile X,” in honor of their son, Alec, who has Fragile X syndrome.
The clinic serves individuals of all ages with FMR1 mutations, primarily those with either the full mutation or a premutation in the X-linked FMR1 gene.
The team is led by a developmental pediatrician in coordination with a nurse practitioner, the Phoenix Children’s Genetics team, and a rehabilitation group.
Meet the team behind the Denver-based Fragile X Clinic, the state’s premier medical facility providing comprehensive care and treatment to children, adolescents, and adults affected by Fragile X syndrome.
The clinic offers a variety of services for youth and adults who have complex emotional and behavioral challenges in combination with autism or neurodevelopmental disorders.
We met with the 2023 Summer Scholars Aditi Mahajan, Alexandra Singleton, and Maureen Butler, and mentors Drs. Randi Hagerman, Emily Allen, and Molly Losh.
The clinic supplements children’s primary medical care with developmental assessments and individualized treatment recommendations from professionals with expertise in Fragile X.
You will get personalized care and evaluation at the Fragile X Syndrome Clinic at Rush — the only clinic for this genetic disorder in Chicago.
RECONNECT is designed to confirm results of the first randomized, double-blind, placebo-controlled trial of ZYN002 conducted in FXS, CONNECT-FX.
NFXF Advocates head to Capitol Hill to ask for ongoing federal funding for Fragile X research and legislation to support telemedicine.
As with all FXCRC clinics, medical evaluation (including medication) is a core component, and families who visit will be able to take home Fragile X-specific treatment recommendations to their primary care provider and to their child’s educators and therapists.
All Love Threads is a fashion brand that channels the love, care, and enthusiasm of the special needs community into modern clothing designs.
Organized and hosted by Andrea and Kevin Marner, the 3rd Annual Quad Cities Fragile X Golf Outing on June 25, 2022, at the Byron Hills Golf Course in Byron Hills, Illinois, was a huge success
The Western Massachusetts chapter hosted an evening of wine tasting, appetizers, a silent auction, and hand-roasted coffees for non-wine drinkers.