David’s family is counting on us to advocate for policies that make a lasting impact for the disability community.
For David, that means having a community where his son Miles can participate in the world, be included, and be seen for who he really is. It means creating a world where people with Fragile X have opportunities to share their talents, build relationships, and be part of their communities.
“You want to see that your child is able to participate in the world.”
That’s why our advocacy work is so critical. Not only do we provide you with a community that gets it, but we also advocate for policies that matter to the Fragile X and broader disability communities. From Medicaid, education, employment and disability rights, to community living, SSI, caregiving, and research funding, the NFXF works year-round to ensure the needs of the Fragile X community are part of policy conversations. You may not always see the work behind the scenes, but we’re continuing to lead Fragile X advocacy and make sure our community’s needs are heard.
With over 80 new Members of Congress arriving in Washington, DC next year, we have a massive opportunity to educate lawmakers, advance legislation, and secure more federal funding for Fragile X research.
It took over 10 years to get the ABLE Act passed, but determination, perseverance, and partnership paved the way for success. We have a track record of success in getting things over the finish line, and we’re at another critical period in advocacy history.
The NFXF will always be here to walk beside you through the good times and bad, offering trusted resources and support on every step of your journey. Your family also deserves a larger community: one that fully embraces your Fragile X experience and helps you find more places where you feel understood, supported, and truly at home.
David said it best: the theater experience [really life in general] is better for everybody when we make room for somebody with Fragile X.
Miles and families like his are counting on the NFXF to keep advocating for a more inclusive world.
We’re counting on you to make that work possible.
