International Fragile X Conference Archives

• Dates: July 25–28, 2024
• Location: Orlando, Florida
• Agenda

• Dates: July 14–17, 2022
• Location: San Diego, California
• Agenda

• Dates: May 29–30, June 27, July 22, 2020
• Location: Virtual

May 29-30, 2020 — Fragile X Syndrome Across the Life Span
Our first two days focused on living with and caring for individuals with Fragile X syndrome. We heard from Fragile X experts and medical providers, caregivers, parents, and self-advocates during six live speaker-led sessions + Q&A, five live panel discussions + Q&A, and over 25 pre-recorded sessions. (Agenda not available at this time.)

June 27, 2020 — Premutation Carrier Issues
The 17th NFXF International Fragile X conference went virtual! Our second event in the series featured live speaker-led sessions and panel discussions plus Q&A, and over 10 on-demand sessions looking at Fragile X premutation carrier issues, including caring for yourself, Fragile X-associated tremor/ataxia syndrome, and Fragile X-associated primary ovarian insufficiency.

Premutation Carrier Issues Agenda (PDF)

July 22, 2020 — Fragile X Research Roundup
For the third and final of the series, we heard from those researching Fragile X. Presenters ranged from basic scientists to those conducting clinical trials for treatments. It included live sessions from top researchers on the hottest research topics in Fragile X plus more than 30 on-demand sessions about recently completed or ongoing studies.

Fragile X Research Roundup Agenda (PDF)