Since 2018, Jay and Anne Souder have hosted an annual golf event called “FORE! Fragile X” in honor of their son, Alec, who has Fragile X syndrome, and 2025 was another huge success!
On Sunday, November 16, supporters joined the Souders at the Orange Tree Golf Club in Scottsdale, Arizona for a 7:30 am tee-off followed by lunch and awards.

The Souders know that living with Fragile X is an evolving challenge for families and caregivers. They have been dedicated supporters of the NFXF since Alec, now in his mid-30s, was diagnosed at age five. Their desire and energy to bring hope to families affected by Fragile X while raising awareness and critical funds for the NFXF is tireless.
In an effort to give back to an organization that has done so much for our family, we look for ways to gather, spread the word and have some fun!
Their goal was $50,000 — as of this writing, they’ve raised $63,193! Giving Tuesday is coming up (hint, hint), in case you wanted to see that dollar amount keep rising! Please check out all the fun photos (and a bonus video) from this year’s event.




























You can also check out the photos from previous FORE! Fragile X fundraisers from 2022 and 2023.
Thank you, Souder Family and your donors and guests, for your generosity in support of families living with Fragile X!


