Webinars & Videos
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In the first webinar of NFXF’s 2026 Webinar Series, we hear updates from each of the current NIH-funded Fragile X Centers of Excellence. This funding remains critical to sustaining progress and advancing future discoveries.
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This session reviews features of attention problems, hyperactivity, and impulsivity in FXS and reviews previous studies of ADHD in Fragile X.
Barbara Haas-Givler and Cora Taylor discuss executive functioning in individuals with both the Fragile X full mutation and the premutation, including what executive function is and strategies to support individuals.
All Webinars and Videos
This session reviews features of attention problems, hyperactivity, and impulsivity in FXS and reviews previous studies of ADHD in Fragile X.
Barbara Haas-Givler and Cora Taylor discuss executive functioning in individuals with both the Fragile X full mutation and the premutation, including what executive function is and strategies to support individuals.
Dr. Heather Hipp, a reproductive endocrinologist at Emory University, discusses reproductive considerations for women with a Fragile X premutation, including FXPOI and the process for diagnosis.
In the first webinar of NFXF’s 2026 Webinar Series, we hear updates from each of the current NIH-funded Fragile X Centers of Excellence. This funding remains critical to sustaining progress and advancing future discoveries.
Dr. David Hessl joined the NFXF to discuss the exciting new ACT for FXTAS study, funded by the National Institute of Neurological Disorders and Stroke (NINDS).
The NFXF hosted an informative webinar featuring Dr. Elizabeth Berry-Kravis, who shared updates on the CDC-funded FORWARD-MARCH study and new insights into Fragile X syndrome and premutation health.
Designed to raise awareness and educate about Fragile X, we are excited to share this one-minute animated video from the perspective of a male self-advocate living with Fragile X.
Designed to raise awareness and educate about Fragile X, we are excited to share this one-minute animated video from the perspective of a female self-advocate living with Fragile X.
Descubre qué es la premutación del síndrome del cromosoma X frágil en tan solo 90 segundos. Este breve video animado de la Fundación Nacional del Síndrome del Cromosoma X Frágil explica cómo la premutación del cromosoma X frágil afecta a las personas y a las familias, y por qué es importante concienciar sobre este tema.
En este vídeo de 90 segundos, respondemos a la pregunta más frecuente: “¿Qué es el síndrome del cromosoma X frágil?”, explicando en qué consiste este síndrome, la premutación y las afecciones asociadas, así como la forma en que se hereda.