NFXF Webinar Series

Participating in Research Studies and Trials

00 h 57 m

Hilary Rosselot, NFXF executive director and research facilitation lead, gives advice and guidance to participating in research studies and clinical trials. Research cannot advance without participation — that is the bottom line. But, we realize it can be an unnerving unknown and a big commitment. Hilary will help you understand what to ask, how to navigate it, and more. She also introduces MyFXResearch portal, our tool to help you find studies and trials you can participate in.

About the Webinar

With Hilary Rosselot, Jen Barber, and Leslie Wieber
Learn more about the presenters

Hilary is also joined by two Fragile X moms who have participated in several studies and trials and share their perspectives and advice.

DOWNLOAD THE SLIDES

If you are a researcher who would like your study listed or have other questions, please email research@fragilex.org.

About the Speakers

Hilary Rosselot

Hilary joined the NFXF team in 2019. Prior to joining the NFXF team, she worked at the Cincinnati Fragile X Research and Treatment Center for several years. She has experience as a clinical research coordinator across many types of clinical trials and served as the clinical research manager for the Cincinnati program. She earned a bachelor’s in psychology, an MBA, and was previously a SOCRA-certified clinical research professional (CCRP). She enjoys spending time with her family, including her young daughter and Boston Terrier, as well as curling up with a good book.

Jen Barber

Leslie Wieber