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Our 2026 NFXF awards are in! Learn more about each award and the respective awardees.
FXS Tips & Support for Traveling + Free Downloads
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Two Letters for Parents With a New Fragile X Syndrome Diagnosis
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Congratulations to Our 2026 Jr. Investigators Awardees!
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University of Minnesota’s Masonic Institute for the Developing Brain (MIDB)
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Moms gathered last week to provide support for one another and share about their family members living with Fragile X.
Nancy Carlson and the NFXF Heartland Chapter — Iowa and South Dakota hosted their 10th Annual Bike To X Out Fragile X on Saturday, June 7, 2025, in Des Moines, Iowa.
Rhode Island families gathered for a night out at a local restaurant on April 12th to share experiences and stories.
More than 50 friends and supporters gathered on September 29 to eat great food, taste various wines, bid for prizes, and raise awareness and funds to support the Fragile X community.
Families for Fragile X held their first “Fragile X Walk” event on July 20 in Warwick, Rhode Island. More than 50 family members, caregivers, and the general public participated their first X Strides event.
More than 50 families and caregivers participated, including heading to the park splash pad to cool off afterward.
Nancy Carlson and the NFXF Heartland Chapter — Iowa and South Dakota hosted their ninth annual Bike To X Out Fragile X on Saturday, June 1, 2024, in Des Moines, Iowa.
Organized by the Western Massachusetts Fragile X chapter this event brought together 26 competitive teams and 150 attendees and raised $4,000.