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Join us for Updates from Ongoing FXTAS Research, a webinar featuring researchers from the University of South Carolina, UC Davis MIND Institute, the University of Kansas, and the University of Maryland. Building on presentations from this summer’s NFXF International Fragile X Conference, the webinar will highlight ongoing research into Fragile X–associated tremor/ataxia syndrome (FXTAS), including […]
Save the date for our next NFXF Advocacy Day. What is NFXF Advocacy Day? NFXF Advocacy Day is an annual event where members of the Fragile X community come together in Washington, DC, and meet with members of Congress and their staff. Advocates share their stories, educate lawmakers, raise awareness, and present our collective Asks, […]
Save the Date! Join the Cincinnati Children's Hospital Medical Center for a free family-friendly conference with speakers and panels with experts. Child/adult care is provided. Lunch is included as well. RSVP is required with the registration link going live in early 2027.
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